Vulval Biopsy and Fentons yesterday and creams question.

I run the Lichen Sclerosus Support Group and I am sad to hear that your consultant has not given you the very basic information you need. The Dermovate and the emollient should be used at least one hour apart, to avoid one product diluting the other. Dermatology advise would be to use the emollient first as this helps with absorbtion of the other treatment. I offer one to one support and have been working with this condition for 13 years, living with it for 16 years. Other people on message boards cannot really help you with this sort of question but your consultant should have given you proper advice about your treatment. Hope this helps

Thank you x

This is very helpful.

Fabia...Thank you for info. We so very rarely hear from you or have a medic who can answer even the basic questions , on these boards, so what we have to rely on is experiences of other ladies and believe you me we get a lot of information and tips on how to control our symptoms from message boards. So many of us have had conflicting info from our medics so isnt that is just as bad as having to rely on what other girls say. Most of the ladies who have this condition know only too well what its like and experience counts for a lot. Who are you going to take notice of -women who have had LS for years and have tried everything or A registrar or doctor who is not in tune with the condition or is training in gyne so is not aware how we feel.I know where i would look. We appreciate what you have done over the past years but our info is not coming out of current research, your pages are of all the same stuff we have read dozens of times.The lady above is a prime example of the stage the medics are still at with this disease. We will have to carry on reading for ourselves until the guidelines of this condition are out there for us to work with.(45 yearold LS for 13 years)

hi, not being funny but can't help but wonder who your medic is fabia as i was under the impression that the steroid went on full stop and the the emolient was to wash with and to cool things down but then i'm no medic but that was what i was told from a medic. So as frustrated lady says there are so many differing oppinions from medics that i would rather go with those who have had experienced ls for themselves with tried and tested remedies etc that works for them. There are some really useful tips on message boards - not just this one - that have worked for me so i say to anyone out there to spread your wings and look around if you can't find an answer you want.

Are you the famous Fabia that was on embarassing bodies - can't believe i'm talking to a celebrity if you are???!!!!!! You're not doing bad though if you've had l.s for that long cause 'it' looked pretty ok to me.

I was v interested to read about Rebeccatulip Fentrons experience as I had this procedure in 2007 (had LS for 15 years+) and no one was available to give follow up advice after even though my consultant had told me it would be vital. I ended up with nasty infection which eroded the good work supposed to be achieved by procedure. Also can anyone (Fabia?) shed light on whether Dermovate is better than Betnovate which I have been transferred to now. I was told this had replaced Dermovate but judging from the posts I have read this doesn't seem to be the case?! I felt it worked better:?

Hi there .....Most info and 'fabia recommends' that Dermoate is the normal treatment for LS.....I was prescribed synalar and have found that extremely effective now for 2 years plus but the normal treatment is definately dermovate....If a person finds that dermovate continues to burn, the info that we ladies have gotten from 'the boards' and medical sites is that betnovate is an alternative for people who burn maybe it is a little weaker than its partner.

Thanks for info. That would explain why it is not so effective!

To rebeccatulip. I was prescribed this routine from my hospital and gp and have heard loads of the ladies do the same and that is, to [i:bcef126c9c]wash[/i:bcef126c9c] with the emollient and then rinse off and [i:bcef126c9c]then [/i:bcef126c9c]apply the steroid. Have never heard of using the emollient, leaving it there and then using a steroid on top later.. If you use a vaseline type emollient it lathers up and gently washes and cleans the area leaving it soft and supple. The cream ones just slide about. I can imagine the steroid would be diluted if you leave the emollient on. Maybe fabia thought you knew that it was to wash with.

I agree with frustrated lady and matt1 in the respect that there are no guidelines for us and too many conflicting diagnosis's and treatment knowledge so we have to find our own way. I have toured many sites and been amazed at how the girls on forums help each other. I know we are not proffesionals but sometimes i feel that experience does count for more. I hope this helps, would not want to confuse.

Hi I am val going for biopsy tomorrow very worried in case it turns out to be something else ,I am told the procedure is pain full and that is putting me off