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I have had vulval pain for a couple of months now. It started after a break up and was originally the most pain I've ever had in my life.
I also swear that I've gained an extra skin fold next to my labia minora.
I've seen 5 doctors now and diagnosis from each doctor varied from lichen sclerosus to yeast and behcets disease. I went and saw an actual gynecologist yesterday and she ruled it all out and said she could find nothing wrong. I'm pretty sure that she specifically said I don't have vulvodynia because it doesn't hurt when she pokes and prods? Meanwhile I was in pain all evening as the aftermath of that exam. She also said it is impossible that I would have an extra fold appear without surgery, but I swear my anatomy has changed!!
Is it possible to have vulvodynia that doesn't cause pain when being actively touched, rather after? Do gynecologists not diagnose vulvodynia? She told me to go to a neurologist next. Is vulvodynia not as a result of nerve damage? I have had quite extensive laproscopic surgeries to remove scar tissue that
bound together all my organs on the same side as I am having the pain.
That is another thing, the pain is right side only and in a very specific area.
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