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waiting for my mvd surgery.

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harleygirl
harleygirl

Good evening. I have been on this forum before but it was quite a while ago so update. I saw the surgeon Mr M at The National Hospital for Neurology and Neurosurgery in London last week and I am now on the waiting list for my MVD operation. Was to have had this done a couple of years ago but due to ill health this was not possible so now the operation is on. Yes , I am a bit worried but having seen the MRI results and being told that while I was having the scan the surgeon asked for them to have a look at the whole of my brain to see if there was something else that could be causing the problem and that was being missed and I was told that all ok but I had another blood vessel under the nerve as well ,so top and bottom..So I now just have to wait for the letter to tell me the date. I have every confidence in my surgeon but as we all know , it is not a 100% cert that it will work. Will have to also wait to see if , after the op , I will be able to pass the lipstick test. Getting the lipstick on a straight , still, mouth without it going everywhere when in spasm !!!!. I also know this may take a while to settle down so we will see how it goes.

cheers Denise.

0 likes, 5 replies

5 Replies

  • Kazzy_D
    Kazzy_D

    Posted

    Hi Denise,

    Although what we are going through is very sad, your post did make me laugh in solidarity. I don't have a lipstick test but a mascara test. The number of time I have ended up sticking it in my eye as my face goes into spasm.

    Good luck with the op. Mine is booked in for October and I am terrified.

    K

  • YKL
    YKL

    Posted

    Hi Denise and Kazzy,

    I did not realise that you have gone as far as booking the surgery already Kazzy! May I draw your attention to a website preparingforyoursurgery dot org. There are helpful advice on diets pre and post surgery to help with the healing of incision wound, relaxation techniques etc. I have followed the diet and also exercised daily for months prior to my surgery. I cannot be certain that this has helped with my speedy recovery, but psychologically at least I feel more positive going into the surgery having done what I could.

    Very best wishes

    Leon

  • Kazzy_D
    Kazzy_D

    Posted

    Hi leon,

    Yes I've got it booked in. I can't believe it really. Like you I've never had any operation. Not even had my wisdom teeth out! I've not told many of my friends or family. I think they would worry about me. They just accept my spasms now as being part of me. They however don't have to live day to day with it.

    I will definitely be looking up that website thank you. I have been doing yoga and pilates for the last 6 months three times a week. Partly to get fit for the operation, and partly as I hoped the relaxation element might help my twitches.

    I think you're right about having a positive attitude unfortunately sheer panic keeps getting in the way;-)

    Kind regards

    K

  • YKL
    YKL

    Posted

    Hi Kazzy,

    How are you? Have you had the surgery?

    Hope everything is going/went well, do let us know.

    Best wishes,

    Leon

  • margaret42881
    margaret42881

    Posted

    Hello my name is Margaret Brady I live in Ireland , I told my story earlier this week .. I forgot to say. I had some physiotherapy after surgery, it helped me. I had hfs for 13 years. And even after the op. I still had the twitch, but the damage of the nerves was unbelievable all the years of not having control of my face.your face is very weak.. Please try this as I believe this treatment helped big time.... The lady who helped with my facial exercise had worked with bells pausey.. I'm sure this treatment helped ... Big time . Best wishes to you alll xxx
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