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Waiting times for treatment after diagnosis

Posted , 3 users are following.

tessy31
tessy31

Hi i was just wondering how long people have waited for treatment after they had a diagnosis on the NHS. Ive been waitin 11 weeks. And rang appointments office and they told me i was actually on the urgent list.

Thanks

0 likes, 10 replies

10 Replies

  • PaineFury
    PaineFury tessy31

    Posted

    I'm not sure if I was on an urgent list, but it took 12 weeks to get my Copaxone

  • drew12
    drew12 tessy31

    Posted

    Took about 4 or 5 months for me to get on Tecfidera after diagnosis. The waiting and worrying isn't easy. Hang on in there

  • tessy31
    tessy31

    Posted

    Thanks for replyin, they told me to ring back next week if i havent heard nething. Am just wonderin should i be prepared for treatments at tis app or will they redo mri to c wat type i have? My other nuero told me she thought i had rr. Thanks.
    • drew12
      drew12 tessy31

      Posted

      Have they offered you any choices of treatment yet?
    • tessy31
      tessy31 drew12

      Posted

      No not yet. Tis will be the first app with ms specialist. The other nuerologist just said she thought it was the rr type.
    • drew12
      drew12 tessy31

      Posted

      Well at your appt you'll probably be given a choice of meds, a load of info about risks and side effects and a range of glossy booklets about them all. You don't need to make your mind up there and then. There's a lot to think about. I was offered a choice of 3 (each with different pros and cons) and basically left to make my own mind up depending on how risk averse I was.

    • tessy31
      tessy31 drew12

      Posted

      Thank you, wasnt sure how it worked. Its such a long process. Hopefully i be hearing somethimg soon. Thanks so much.
    • wendy80842
      wendy80842 tessy31

      Posted

      Hi, as you're dealing with the NHS (like me), it might be useful to record what's been happening to you, symptom wise, it'll help get your information across and make best use of the limited time we all get. If you haven't had recent MRI's done, they may need to do more, to get an idea about how damage is happening and at what speed, too. Ask if you'll have an MS nurse, as they tend to be a great resource of information and support.

    • tessy31
      tessy31 wendy80842

      Posted

      Thanks Wendy, i was thinking they might do another test to see if thered being nemore activity. Im relatively well so not even sure if they'd offer ne treatment. Xx

    • wendy80842
      wendy80842 tessy31

      Posted

      Keep everything crossed, it might be that you have benign MS, it's not common, but it's possible, very occasionally MS can fizzle out. Either way, it's great that you're well now.

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