Waiting to see the dermatologist. How to manage things until then?

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I've now got a dermatology appointment - but not until 1st June!   At my last appointment with the GP who did the biopsy - result 'chronic inflammation' - he said I was to apply Dermovate when needed.  I thought this was rather vague.  After seeing another GP at the practice, he was happy to refer me.

So what would be the best thing to do while I wait for the appointment, as regards the Dermovate?  I'm itching again, but I'm using an emollient, spraying with water after using the toilet and trying to minimise the number of times I use the steroid.  

I'd appreciate any advice. 

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6 Replies

  • Posted

    My doctor would say to use the steroid twice a day for a few days then once a day to get under control. I use two or three times a week as maintenance.
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  • Posted

    Hi Cheetah,

    Me again... sorry you are still having all this.  I asked the same thing on here about the dermovate so I'm probably no use but just wanted to wish you well.  Is that a quick referral as I don't know where you live but that seems a long wait.  I know it has to be in the 18 week guidline can you not ask gp to refer you on a bit quicker if you explain your symptoms seem to flaring up again.  I understand about the clob I don't like using it I got told to use Betnovate instead but like you say if you stop it starts prickling again.  As I remember you gp said to use the cream but I know you will be anyway but a tiny tiny amount.  I wonder if fungal could be at play as well.  Is it a vulva specialist you'll see?  The inflammation thing I got on biopsy as well I think it would of been easier for us to just get LS on the result, because it came back with this it's almost like they now think we don't have it.  Xx

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  • Posted

    I'm in the exact same boat. Been suffering with itching and pain for almost a year now. They kept saying I had an STI but all results came back clear. They assumed LS but they now say it can't be because I'm too young. Famous last words! I too had inflammation results from a biopsy. I'm waiting to see a dermatologist. I'm in agony. I just started dating someone. What the hell am I meant to tell him?! I've started having really painful blister like sores. The GP suggested I get tested for herpes! They have no idea what's going on and neither do I. It's am awfully scary and painful situation. Let me know how you get on and I'll do the same. I so desperately want answers.

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    • Posted

      If you are in pain with constant itching call the doctor and ask for help. I was in my 20s when I first had problems. It went into remission until age 58. If it is LS then the steroid medication will help get rid of the sores. I had that too but not anymore. You need to be treated with medication I believe.

      Good luck and feel better soon.😌

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    • Posted

      You're really going through it, Samoulyn and, especially if you've got sores,  I feel for you.   I would agree with Mary that you need some medication.  

      You need to go back to your GP - can you see somebody different?  Hopefully, they will be able to help while you're waiting to see the dermatologist and perhaps even bring your appointment forward.  From what I've read, there is no 'age' for having LS and even children can have it.

      What may also help is washing with something like Hydromol and using a moisturiser - I use coconut oil.  But, I think the important thing is to get back to the GP.  How about printing off and taking in the information page for LS on this site?

      Do let me know how you get on.

           

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