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Waking up with pain.

Posted , 9 users are following.

kaz_40
kaz_40

I wish we didnt all have to wake up like this each morning. 

4 likes, 25 replies

25 Replies

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  • julia54537
    julia54537 kaz_40

    Posted

    Hi Kaz I definitely agree there in absolute agony today and so tired interview at jobcentre a complete joke told me should be on sick then wouldn't have to visit them made it clear to her that this is my final chance at work and if I don't go there will no money coming in as getting nothing from them anyway with my own car in the garage and looking at a bill of near one thousand pounds approx there will be little left to shop with plus have to get boys school shoes uniform and sports shoes for return to school in September got call this week to go Torquay for Atos PIP assessment but because on job club day and car problems turned it down plus the added stress of not being where I live just puts more on my already broken body which gets weaker by the day hands are really sore and shoulders giving me grief together with back of my head where headrest impacted and back agony too booked in with Dr next week as can't take much more what with IBS diarhoea confining me to home too more than had enough.  Had call from my sons DAF lead as have asked her to be my support for assessment when get another appointment she is his school nurse and I hope this will get the assessor to see that I am not pulling any strings and of course they are unaware if this further trauma and she is also to ring my pain management team as feel they should be taking my physical needs more seriously and providing me with suitable mobility aids crutches or walking stick but all depends on what I can cope with given tennis elbow, splinted left hand/wrist and two painful hands too.  Four weeks today and feel nowhere near in the road to recovery absolutely no energy and totally shattered cleaned toilet and bathroom fully for first time in that time and my right knee was agony oh for a new body.  Gentle hugs.  Julia
    • kaz_40
      kaz_40 julia54537

      Posted

      Hi Julia54537 I know youve applied for pip, but if your on a low income would you be able to claim working tax credit. I know their is a thresh hold to what you can earn. But if its under the threshold you could cliam. I know claiming anything is very stressful.you have to jump through hoops to get anything now a days.You could definitly do with aids to help you.My physio got me a walking frame and stick I have 2 commodes bath board perching stool for kitchen. I had occupational health come out to see me they were from local council.They assess you and see what you need to help you. My dr refered me to them. Its good that your sons school nurse go with you. Having some one like that should be a big help in them hopefully seeing that you are not swinging the lead. not that you are.I have found that when I am ill fibro does 2 thinkgs makes the illness 10x worse and the recovery period takes alot lot longer. you have had a massive trauma with having your accident. so you could find with you having fibro the recovery period will take longer.I know its easier said than done saying to some one dont stress worry, but when we do it just makes our condition sooooo much worse.Have a word with your gp see what help support she can get you as you really do need it. cab are really good when you need advice. My heart goes out to you with all that you have going on dealing with fibro is bad enough, with out other things added to it. I certainly would not worry where house work is concerned youve enough on your plate.Im thinking of you I feel so bad for you. The ibs is down to stress and worry ive had it past 2 weeks because of stress worry. you take care gentle hugs xx . 
    • susan556
      susan556 julia54537

      Posted

      Hi Julia, its so cruel and unfair the way your suffering having to attend job centre apppointments, yes you should be on the sick without a doubt, you should be getting mobilty and care  money to, years ago it was so easy when one got taken seriously and claiming was more easier and straight forward, the governmnent has as always gone over the top with removing peoples benefits, ive already had a letter saying i will be re assesed by the end of of 2016, i know i will lose the lot and im not bothering to apply for the pip which seems impossible to get now, if my grand daughter with M.S. got turned down with 1 point what hope i have i got. She is still getting worse and her sight is now affected, her job a hair dresser, poor love, she has had to be sighned off by her doctor for a few weeks as just cnat work, hoping new drugs will help her.  Its appauling that your even being exspected to look for a job.

      Gentle hugs to you and aevryone else suffering

      Sue x

    • kaz_40
      kaz_40 julia54537

      Posted

      Thinking of you Julia54537 Take good care of yourself gentle hugs xx
  • Meg53
    Meg53 kaz_40

    Posted

    I am so sorry you are in pain, you poor poor thing. I wish the doctors could help you, you need some relief from this. I know you have tried all the prescription drugs, is there any point trying smaller doses of the traditional fibro drugs and then titrating up to the level with minimum side effects and yet some relief from the fibro. 

    I just do do not know the answer to all this but I feel anything is worth trying at this stage. I personally get some relief from Lyrica, even though I am on a low dose.

    gentle gentle hugs

    Meg

    🌺

    • kaz_40
      kaz_40 Meg53

      Posted

      Hi Meg the last thing I tried was a pain patch, it was the lowest dose my gp, could give me. I reacted so badly to it my husband had to phone the hospital. My gp has always started me on very low dose,, she has since said. because I have reacted so badly she thinks Im allergic to anything with opoids in. It would be great to be able to take something.hot water bottles wheat bags do help a bit, I know their will be no bad reactions with them.you take care meg gentle hug
  • Flowerlady
    Flowerlady kaz_40

    Posted

    Morning Karen

    That pic remind me, of me. But I normaly have my head under the pillow, as I can't stand the brightness...

    • kaz_40
      kaz_40 Flowerlady

      Posted

      Hi Anne thats me every morning,my head is sometimes under the pillow 1 is trying to drown out my husbands snoring, and 2 like you I cant sometimes stand the brightnessrolleyes. take care Anne x
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