Walking!
Posted , 15 users are following.
How is it that most of you say walking helps you get rid of the pain? If I walk for 20-30 mins I have pain which takes ages to clear up - sometimes into the next day, or even the day after (and it has since the PMR started). Exercise is good for you! OK, I know that, but what do you do if you get more and more pain by doing it?
0 likes, 38 replies
EileenH constance.de
Posted
For example: I had horrendous low back pain if I walked or stood for more than 10-15mins. It wasn't PMR it was myofascial pain syndrome that was particularly affecting my lower back and making the muscles spasm and that, in turn, was pulling the sacroiliac joints about. They were getting inflamed and that hurt. Eventually it was so bad I literally couldn't move without screaming.
I assume you are under a rheumy for the PMR. Where is the pain? Back? Legs?
Is there a really good orthopaedic doctor in your area? I had a wonderful one in Herzogenaurach (Adidas town in Bavaria) who had also trained in chiropractic - his Chefarzt was adamant it was an essential skill for an orthopod. Ask around.
Or ask your doctor for a referral to the local pain clinic.
constance.de EileenH
Posted
What's the difference between a rheumy and an orthopod? I thought the rheumy would see to all those things.
I've thought of a pain clinic but they wanted me to go into hospital for 1O days. I have an in-patients sojourn coming up soon in a rheumatology clinic, so I'll have to put the pain clinic off for a considerable time. (Don't know if my insurance would pay for both).
EileenH constance.de
Posted
"Patients might need an orthopedic physician if they have:
Joint or musculoskeletal pain that began after an injury
Gradually progressive hip or knee pain that is worse with weight bearing
Joint pain that is severe and interfering with function
Moderate or advanced arthritis of the knee or hip
Previous unsuccessful treatment for joint pain
Been told by their doctor they might need a joint replacement
Patients might need a rheumatologist if they have:
Pain involving many joints
New joint pain not associated with any injury
Joint or musculoskeletal pain associated with morning stiffness, fever, fatigue, rash or chest pain
Joint pain that followed a tick bite
Joint pain associated with back pain
Joint pain and psoriasis
Muscular pain with or without any other symptoms
New headaches or muscle aches and are over the age of 50
Back pain with or without pain in the legs
Unexplained, ongoing symptoms such as fever, sweats or weight loss"
It depends what is causing the problem - orthopods do more mechanical things. If you had RA and a joint was damaged it wouldn't be the rheumy that sorted it out, you'd be sent to an orthopod. It was the orthopods at the hospital who dealt with my trochanteric bursitis with steroid injections.
But actually - an orthopod didn't recognise the source of MY low back problems when I was seeing him after a whiplash injury which probably made the muscle problem worse, he just looked at the upper back for some reason. Does your insurance allow you to see a physiotherapist without being referred? Physios are very sensible people when it comes to muscle problems or bursitis and a good place to start.
constance.de EileenH
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EileenH constance.de
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molly1957 constance.de
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EileenH molly1957
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noninoni constance.de
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reggie92967 constance.de
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constance.de reggie92967
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nervebyte constance.de
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JanSP constance.de
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constance.de JanSP
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Luckily though I LOST weight.
Carry on "whining", we all do so every now and again, and it does us good to know there is someone out there that UNDERSTANDS.
Try to keep positive.
All the best fr Constance
reggie92967 JanSP
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reggie92967
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EileenH reggie92967
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And you should be on both calcium and vit D as a precaution against losing bone density anyway but you should have had a dexascan to visualise the state of your bone density. If it is OK then calcium and vit D may be enough, if it isn't you may need other approaches.
reggie92967 JanSP
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Silver49 reggie92967
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reggie92967 Silver49
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EileenH reggie92967
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JanSP reggie92967
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The highest PMR dose I was on initially and with my one flare was 40mg. It was like magic. From almost not being able to walk to being able to crawl upstairs to the bedroom I couldn't stop saying "It's a miracle." I don't know why my rheumy used such a high dose for PMR but maybe it's because I already had GCA?
It seems like no matter how much I sleep and nap (with a CPAP-no oxygen) I still wake up fatigued. I'm lucky my husband does the shopping, cooking and some of the cleaning.
Good luck.