Posted , 7 users are following.
Hi everyone, I'm writing to get feedback about how your BRX has progressed. For the first seven years I literaly had no problems except for occasional respariotory infections. About 18 months ago I began to have fatigue and it has moderated some since so that I am about back 75% normal. Less fatigue is a welcome guest.
In the last year I have begun to have exacerbation of the BRX with comes with gobbs of sputum priduction and not feeling well. My temperature in most of these cases has is low grade for me at 99.3. My recent event this past week had me feeling a bit more sick with my temp. at 100.6.
Usually, as I said, there is a round of antibiotics and steroids though I am trying to stay away from the two drugs so that I dont't develope all the consequences of overuse. The most recent event is being treated with Avelox.
Recntly I was diganosed with an ACHROMOBACTER lung infection and saw a great ID MD. He said that trying to eradicate the infection would mean hospital stay and perhaps home IV antibiotics. He said that alot of us have infections like these and as long as they do not make us sick it is better to leave them alone. He said if I do get sick that he would admit me directly and begin treatment. For this most recent event he said if I didnt respond quickly to the Avelox that he would admit me. My fever was gone in12 hours.
After saying all of this (I hope at least one or two of you are still with me), I want to begin to pursue a more agressive line of attack that might end with Stem Cell inplant. I am willing to do what ever it takes.I think maybe a lot of you are dealing well enough with your BRX, so I would like to hear from you about how you managing: Diet, exercise, rest, sputum evacuation, medications, seeing your doctor on a regular basis, or what ever else that I might use to stop the large number of infections I am getting. I have had thirteen illness visits in the last year for antibiotics and or steroids.
Thanks for any and all of your thoughts and advise in advance.
1 like, 46 replies