Want to get tested but my doctor never listens/Dependent on my inhaler

Posted , 6 users are following.

Hi! Just to give you a bit of background I'm a 23 year old female and I've been going to my doctor with verious symptoms of Cushings since I was about 16 years old. Its taken me this long to put all my seperate symptoms together and I'm convinced this is it. After years of having doctors tell me they can't figure out what's wrong with me and there's nothing they can do I feel this finally makes sense. But my doctors have never been very good, for example even thought I have regularly asked for help coming off my corticosteroid inhaler (I am dependent on it, cannot breathe at all if I even miss one day, he sees no issue in this) my doctor just won't listen to me. He just waves a hand at me and tells me to carry on using it and I'll be fine. Was wondering if I could get any advice on how to talk to my doctor about potential cushings? Or if anyone can advise me on what to do about my corticosteroid dependency. Thanks and sorry if I sound ill informed. I literally learned about this syndrome yesterday after desperately searching symptoms. 

0 likes, 4 replies

4 Replies

  • Posted

    Sarah, Ask your doctor for a referral to see an Endocrinologist. Explain whats been going on to the Endo. If your cortisol levels are high they will help wean you off your inhaler and get your cortisol levels back to normal. When talking to your doctor you need to use what i call the Poo sandwich. Start with a positive. Start by telling your doctor he is a great doctor and your value his advice however as you have been on corticosteriods for so long you feel you would benefit from the care of a specialist who deals In cortisol issues and you would like a referral to see an Endo. Finish the sandwich with a positive stating that together with the endo, you your doctor and the endo can work as a great team and have you well in no time smile

    I hope thats helpful to you. I use the poo sandwich with most things in life. Its the easiest way to get what you want in life. The positive complimenting statement followed by the main issue followed by how we can fix it.

    It usually works

  • Posted

    Hi Sarah,  So sorry to hear your story.  Cushings can be triggered by too much Cortisteroids.  As you are dependant on this please continue taking it.  Can you see another GP or ask to be referred to an Endocrinologist.  You don't say what your symptoms are.
  • Posted

    Hi Sarah,

    I concur with all of the earlier responses.  It is important to see and Endo.  I live in the US and our healthcare system is different here.  I would reach out to anyone you know in the medical field to see if they can give you some pointers on how to move your case in a positive direction.  Sorry I couldn't have been more help.confused

  • Posted

    Hi Sarah,Try going to the Pituitary Foundation website.They have all the connected conditions,including Cushing's.You can contact them too for advice on what to do,either by email or speak to someone.They are really very helpful.Gill

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