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Warning about bile salt supplements

Posted , 5 users are following.

bgreen0722
bgreen0722

For those who are still having right quadrant pain after gallbladder removal, be VERY careful about adding bile salts supplements to your regimen. I had the same exact pain after surgery as I had before it, and I ended up being admitted to the hospital and diagnosed with C. Diff. Turns out I was exacerbating the pain and feeding the highly contagious and potentially deadly intestinal tract bacterial infection by adding bile salts supplements to my diet. Suffice it to say I was close to death. Just please, don't change your digestive enzymes without consulting your doctor.

1 like, 13 replies

13 Replies

  • lynda20916
    lynda20916 bgreen0722

    Posted

    I hope that you are recovered!  What a terrible thing to happen!  How good of you to let us know.

    If it helps to know you're not the only one, one of my doctors said he had a patient with thyroid cancer, who went to a health food store and told a sales clerk that they were having thyroid problems.  So, the health food store clerk suggested an iodine supplement.  The patient, all unknowing, took the supplement and the thyroid cancer went everywhere in their body.

    It can be so dangerous to take supplements!  Best of luck to you!  I hope you're doing much better!  

    • Star42
      Star42 lynda20916

      Posted

      I really do not believe this was from the iodine, we naturally have idone in our body, are given it for scans as contrast, including in cancer for thyroid, it is naturally in foods and lots have healed themselves using iodine, even with cance. likely it was nothing to do with the iodine and it just sadly spread sad

    • lynda20916
      lynda20916 Star42

      Posted

      Hi, Star,

      My doctor implied it was from the iodine.  I just thought I would offer it as anecdotal evidence...

  • cmross1108
    cmross1108 bgreen0722

    Posted

    Agreed! I don't take anything unless my doctor tells me to. Thankfully, my doctor tested me for C. Diff. The sample was "too solid" to be considered (who'd have thunk) so I'm hoping that means I don't have it!!

    • basten
      basten cmross1108

      Posted

      what is C diff? I had galbladder out April 15 and in horrendous pain all through body ever since and had pancreatitis Xmas 15 but MRI showed all looked OK and discharged in pain. More I eat worse it is all day. GP tried Creon but they even burnt my stomach. Everything burns even fruit and water awaiting another CT scan and seeing another GI specialist in pancreas ERCP procedures I hope he will do despite risks as I have lived with this over a year and it is hell and got worse
    • cmross1108
      cmross1108 basten

      Posted

      From google:

      Clostridium difficile colitis results from disruption of normal healthy bacteria in the colon, often from antibiotics. C. difficile can also be transmitted from person to person by spores. It can cause severe damage to the colon and even be fatal.

      Symptoms include diarrhea, belly pain, and fever.

      Treatment includes antibiotics. In rare cases, fecal transplant or surgery may be needed.

    • lynda20916
      lynda20916 cmross1108

      Posted

      Hi, there, more info.  C. dif spores can contaminate where an infected person resides. C.dif contamination can be found in hospitals, nursing homes, retirement homes and rehabilitation facilities, as well as residences. The result of this is that (in some areas of the US) companies expert in removing the spores need to be hired to investigate the extent of the contamination and clean it up. This can be highly expensive.  So, when entering any of these type of facilities or buying a home, one needs to inquire whether someone having C.dif has ever lived there and if the contamination has been properly dealt with.  

         

    • bgreen0722
      bgreen0722 basten

      Posted

      If you feel like you are slowly being poisoned to death, it might be C. Diff. That's what I felt like along with the pain.

    • bgreen0722
      bgreen0722 lynda20916

      Posted

      That's exactly right Lynda. As soon as my diagnosis came in, every person who came into my room at the hospital wore gloves and gowns. Highly contagious. Always wash your hands with soap and water when leaving any public place. Alcohol-based hand sanitizers do not kill c-diff. Even when you leave the grocery store and get home you should wash your hands.

    • bgreen0722
      bgreen0722

      Posted

      And also, it can live for a really long time on hard surfaces. Use bleach on them and hope for the best. It is a horrible infection and mine fester ed for weeks. I am lucky to be alive.
    • lynda20916
      lynda20916 bgreen0722

      Posted

      Yes, it's awful.  A friend of mine was responsible for selling a house for a deceased person.  This person was handicapped.  Though they did not die from C.dif, they had it several times.  The house had to be remediated before it was put on the market and the realtor was afraid that no one would buy it, because it had to be disclosed.  Eventually, someone did buy it, though the price was discounted.

      Frankly, I think that C.dif is not considered to be as serious as it is.  You are indeed lucky to be alive! 

       

  • basten
    basten bgreen0722

    Posted

    Oh thank you for telling us.  So many things one can buy that are unsafe. So glad you are recovered 
  • Star42
    Star42 bgreen0722

    Posted

    wow really shcoked by this, everything I have read and researched, even from gallbladder specalists say to take ox bile after removal and it is essential? I have already bought some in preperation! will def check with the Dr. Hope you are much better.
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