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Was diagnosed with Nephrotic Syndrome and Membranous Nephropathy in July...

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TruckerJustin
TruckerJustin

I wasn't able to see a kidney doctor til October, and he wanted to put me on Cyclophosphamide / Prednisone off and on treatment for 6 months, take for one month, then take Cyclophosphamide for one month, and switch for 6 months.  But my insurance wouldn't cover cyclophosphamide, so he put me on prograf.  I started taking prograf on November 25th, and I am so weak now its not funny, I cant even complete doing dishes without having to take a break.  

?Anyone else in this situation?

1 like, 2 replies

2 Replies

  • LiliBelle
    LiliBelle TruckerJustin

    Posted

    Your doctor needs to write a medical necessity letter to your insurance company if you are have severe side effects   Insurance companies may approve the more expensive med once you have unsuccessfully tried the less expensive drug, 
  • karie88877
    karie88877 TruckerJustin

    Posted

    hello TruckerJustin

    i recently to found out that i have PMN. im in process of transplant. but im curious u said that they put u on prograf. im familiar with this cuz my daughter had a liver transplant. so did u have a transplant or are yhey trying to see if putting u on these kinds of drugs will reverse your kidney functionand if so wat is your function currently. thank you karie

    oh ans i agree with lilibelle. your doc needs to write a letter to your insurance company and use the key words "life threating". i know this cuz my ex has diabetes..juvenile type 2 and they are always trying to five him something cheaper that causes life threating issues.

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