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Was hoping to reduce pred this weekend but!!!!!!!

Posted , 5 users are following.

pat38625
pat38625

Hi everyone, I am on 15mg of pred for my PMR and will see my doc. on Friday afternoon with the letter from consultant Rheumy about my reduction plan, sorry no HIS reduction plan for me and AA he has prescribed.  I was hoping to reduce down to 12.5 this weekend but I feel I am coming down with something (ie. a cold or chest infection) but we shall see.  If something develops then I should just stay on 15mg pred until I feel well again.  I wouldn't have known this only for Eileen and all the other more experienced ladies.  Any comments welcome or the do's and don'ts.  Thanks in advance.  Pat

1 like, 12 replies

12 Replies

  • carol16456
    carol16456 pat38625

    Posted

    I only drop by half a mg of pred . every two to four weeks . I have learnt from all these good people on here (the slower the better ) if you get pain or shakes or both in the first few day it is probably withdrawal , however if it starts several days later could be a flare up . When I get this I usually go back up half mg and stay at that for a week or so and try reducing again . Elliene had a slower plan which works for a lot of people and hopefully she will send you a link . Good luck
    • pat38625
      pat38625 carol16456

      Posted

      Hi Carol, thanks for the information.  It may come to nothing but I just wanted some reassurance.  I have Eileen's plan but was hoping to start that plan when I am at 10mg.  

      I will observe symptoms (if I reduce) ie., pain or shakes or both in the first few days.  I was on 20mg for 9 weeks and then went down to 17.5 for 6 weeks and then 15mg for 6 weeks, so I was due to reduce down to 12.5 but if I am coming down with something I will just stay with the 15mg until it passes.  Thanks again carol.  Pat

  • MrsO-UK_Surrey
    MrsO-UK_Surrey pat38625

    Posted

    Pat, no don't attempt a reduction if you feel an infection is lurking, nor at any time until the infection is completely out of your system. Meanwhile, I hope it comes to nothing - fresh garlic might help to fend it off.  Also Manuka honey.  Fingers crossed for you.
    • pat38625
      pat38625 MrsO-UK_Surrey

      Posted

      Thank you Mrs. O, I just wanted some reassurance.  It may come to nothing.  I am going to take some Manuka honey this minute.  Thanks for the tip.  Pat
    • erika59785
      erika59785 pat38625

      Posted

      Yes, Manuka Honey is very good.....it contains natural antibiotics....so I hear.  All the best and feel better soon. Erika
  • erika59785
    erika59785 pat38625

    Posted

    GOOD THINKING, PAT!!  It is best to stay on 15 mg!  Sorry, that you are coming down with a cold.  Rest....lots of fluids....I am sending you caring and healing thoughts.

    I am leaving for Vancouver, B.C.tomorrow morning to spend time with my daughter's family for Easter.  Toodle pip :-) Erika

     

    • pat38625
      pat38625 erika59785

      Posted

      Hi Erika, thanks for your kind words.  My symptoms may come to nothing but am being vigilant.  Yes, rest and I do drink 2 to 3 litres of water every day.  Thank you for your caring and healing thoughts.  

      You have a good time at your daughters and enjoy the holidays, take it easy and let others tend to you hand and foot lol.  Loads of healing and positive energy going over to you now.  

      Yes a Toodle and a Pip :-)      Pat

    • erika59785
      erika59785 pat38625

      Posted

      You are up bright and early......Thanks Pat!  A Toodle and a Pip!  I will mention this to my Scottish son-in-law.  Maybe he knows the expression.  He says his family came from Ireland.  Their daughter Sophie is a fun one.....full of pep, fun humor. 

      Talk when I get back.  Hugs, Erika

    • EileenH
      EileenH erika59785

      Posted

      Toodle pip:

      "Toodle-pip seems to be a variation on a similar exclamation of farewell: toodle-oo. This was first recorded in 1911 and has two suggested roots:  the tooting of a horn, possibly that which had once sound as a coach set off (although it could also evoke the huntsman's horn, setting the hunt in motion), or an English-ed pronunciation of the French à tout à l’heure, goodbye.The substitution of pip for -oo presumably borrowed one of the 'pips' from yet another way of saying goodbye, and indeed hello: pip-pip. According to J. Redding Ware, in Passing English of the Victorian Era (1909) this was originally a jocular street cry, aimed at passing bicyclists, who were still a pretty rare sight in the late 19th century. It was echoic of the sound of the horn which sometimes replaced the bicycle's bell. The use as hello/goodbye was first recorded in 1906 in the Marvel, a boys' comic and would become especially popular among the characters of the comic novelist P.G. Wodehouse."

      I remember toodle-oo being used in my family in the 50s and 60s by a few members of the older generation. I don't think it is in common usage these days so younger people may not have heard of it. I suppose I always think of it as being a very upper-middle class expression - but that may be because of P.G.Wodehouse's novels.

    • pat38625
      pat38625 erika59785

      Posted

      Hi Erika, No I was up late last night.  Hope you enjoy your break.  Yes catch-up when you get back.  (((Hugs)))
    • pat38625
      pat38625 EileenH

      Posted

      Hi Eileen, yes I agree with it sounding like an upper-middle class expression.     I do it tongue in cheek but only in an email or something like that.  
    • erika59785
      erika59785 EileenH

      Posted

      Thank you for the explanation of toodle-pip.  Interesting to an Austrian born German living in America and visisting a Scottish chap who is my son in law.  I do love ITALY!  Eileen, you are lucky that you live there!!
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