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Was this caused by Allupurinol??

Posted , 4 users are following.

swilford99
swilford99

Hi

​Firstly a little background!

​Suffered with Gout for 20 years (60 now) and usually controlled wihin a few days/week with Naproxen, but over the last few years (4/5) the attacks have become more frequent.

​The latest attack started in January 2015 and is still present with some days much worse than others and occasionally absolute agony where C0-codamol or Tramadol just do not touch it and I cannot walk.

​It has now settled to my big toe on the right foot but was moving daily from one ankle to the other and one big toe to the other. I am sure many of you will have experienced something similar.

​GP >> Blood Tests >> NSAID and put me on Allupurinol (100mg) and further blood testshave shown little improvements so upto 200 mg and then 4 weeks ago to 400 mg

​Since then I have experienced on two separate occasions the following symptoms and I wish to ask if anyone has experienced the same and if this maybe related to the drugs I am taking or whether it was unrelated. I am due to see my GP again next week and will obviously discuss these issues but I would be interested to know if anyone has gone through anything similar

​I had quite severe pains in my lower back around my kidneys and moving around to the left side of my groin and the pain would come in spasms a bit like cramps (no diahorrea or constipation). At the same time I experienced general joint pains in my fingers, elbows and ankles but also a strange tingling sensation on my forearms and thighs while at the same time very sensitive to temperature change where anything slightly hot (getting in the bath) or touching something cold was uncomfortable.

​Lasted about 2 days on both occasions and was very debilitating

​I am becomming more and more concerned that this latest episode is not being controlled and the joint of my big toe seems to be constantly swollen (although not particularly red and hot) and it it now seriously affecting my qaulity of life and ability to exercise and even get to work and back

​Any comments would be most gratefully received

Thanks

 

0 likes, 3 replies

3 Replies

  • keith48631
    keith48631 swilford99

    Posted

    Well Swilford I ditched allopurinol many years ago, my consultant told me he had no idea what the long term effects would be from taking this drug. If you need blood tests every six months to check your liver whilst taking allopurinol it's obvious there must be some adverse effects by it. There is an absolutly marvelous tablet well it suits me it's called ARCOXIA 120mgs ask your GP for some dont take no for an answer, also I take sour cherry juice and turmeric tablets, the GP gave me these as a rescue pack told me to watch my diet so there is no need for allopurinol when I get an attack I take one ARCOXIA every twenty four hours until the pain goes sometimes only one tablet is needed.

    Good luck

  • 21Dewsbury
    21Dewsbury swilford99

    Posted

    Hi Swilford99,

    I guess I have 3 key messages.  This is what I did and all is good with me.

    Note that the advice below is based on my meeting with a specialist 2 days ago.

    1. Ask your GP to refer you to a specialist.  To state the obvious the "G" in GP stands for "General" ... you need a specialist not a generalist.  I paid about £100 for 15 minutes with a specialist.  The best £100 I ever spent.

    2. Allopurinol works. Take it every day. Do not stop. Note that it is a preventative drug and will not make a difference if an attack has started. Colchicine is a great drug during an attack.  The sooner you take it the better.

    3. Lifestyle , diet , alcohol .... these are not really that relevant and can be a distraction.  Allopurinol is the answer.

  • timothy12884
    timothy12884 swilford99

    Posted

    I had the same pain in my kidneys and toes, andkes, elbows, knees and spine. I went on allopurinol and it was worse. I didn't want to be on pills that may damage my liver or kidneys, and taking allopurinol during an attack is too late. It must be taken before an onset of gout. I went to a nutritionist and no meds. doing great now 10 months so far. I use fruits and vegetables for my main course and meat and sweets at the tip of the pyramid. I switched to 1% milk and eat salmon instead of steak. I do eat steak occationally but mostly chicken and fisn. Could not believe how much better I feel. Kept getting better for about the first 2 months. I had the kidney pain for years and now it's gone. I also cut out on sugar, soda, beer, and hfcs. Sugar and hfcs lead to inflamation. I try to eat the foods that make me more alkaline Vs acidic. It can be confusing because some foods that are acidic make your body chemistry more alkaline. I'm 59 and tried to diet before many times but the pain really got my attention. I like living with out the pain. So far I doing OK. Good luck and stay away from shell fish. I drink alkaline water, cherry juice and plenty of water. If I'm going to cheat on the gout diet I take PHgreens ( a powder mixed with water, expensive but it goes a long way ). And that seems to keep me more alkaline. And my BP has come way down. I'm walking 3.3 miles a day also. Lost 15 lbs. so far. We are all different so what ever you do to keep the gout at bay, best wishes. Knowledge is the best way to have the most options for success.

     

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