Was this fall Fibromyalgia related

Posted , 8 users are following.

hi new to this group and just wondering if anybody could shed some light on something for me.  I have been a sufferer of fibro for a number of years now and cope well with the pain even able to do dance twice a week as a keep fit with cocodamol in hand so some may say I am v v lucky x but recently I have the worse memory for the simple words forget what I said a minute a go and basically concentration is bad.  I feel dizzy in supermarkets at times but put this down to not eating enough and not been had another episode for a few weeks of that testing blood sugar and was ok.  Yesterday I went to a shopping outlet which was v v busy and when walking out of boots to find my hubby I went down like a sack of spuds onto the floor.  I did not trip and nothing was in my way but the moment I knew it had happened I had several people looking down at me concerned.  I just wanted to get up and find my hubby so left in tears.  Are falls a problem? I do feel confused at times so maybe that was it.  I am in lots of pain this morning and bruised knees and hip 😔 but worry that I've I put everything down to one of those things I might miss something x 

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  • Posted

    Hi Amanda; yes I too, can relate to your concern:   i have not actually fallen (well I have lost my balance)....but was only Pure luck that I didn't/havn't.....one day in August, I was at shops with son and grand-daughter, going up an elevator, and lost my balance, and if someone hadn't grabbed me, I would have fallen down (& Goodness knows how far I would have fallen, as was nearly at the top).......all the other things re memory loss/speech probs etc are with most of us, too...(& yes this is embarrassing/frustrating as I guess we look like we are drunk to those who don't know us/condition)...........however, it is probably wise not to just say it "was sceondary to the Fibro".....did you have any problems with speech at the time? i.e.    slurred speach/difficulty saying the simplest of words;   and any weakness felt on either side of body???   IF this should happen again, try saying "split milk/scrambled eggs".......also if you try sticking out your tongue and find it "droops/comes out in a skewed way" then seek medical assistance Immediately......it can be hard to differentiate at times like this, but to be sure, always have these episodes checked (i.e. if abnormal and you are concerned)......it is probably wise to tell your GP/primary carer about your episode next time you visit??   in the meantime, take good, gentle care of yourself...................(I know we all say this to each other, and mostly don't do this,, as this is the type of personality that we are.......but we can try to remind each other, and just maybe we will start to remember this in time??)...............................Bronwink
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  • Posted

    Hiya amana i welcome i cant give you any info on the fall, except, ive heard of others its hapoened to..but yiur forgetfulnessetc..is called Brain Frog something that nearly all of us get....when I

    first started to get it some years ago now I thought I had brain

    cancer..gee i was worried...but after seeing a neurologist and having all the test...it was all good..but what a worrry wart I was for

    that month I had to wait to see the Neurologist., but my Rhumotologist who is my fibro dr..suspected it was brain fog and just

    wanted to put my mind at rest..he recommended I buy this book..it was really great too, we share many experiences on here about our funny brain fog moments...so please stop worrying amanda...fibro loves stress..makes us soo much worse..ive had

    Fibro for 30 years, after all these years it goes into a sort of a

    semi remission a few times a year..although I still only get bad

    muscle spasms now and if I stress out it will come with a

    vengence. I manage it very well like you do, but I really hate this brain fog, and the tiredness...be blessed amanda..this is a great

    blog site full of knowledge learned through experience and

    shared with empathy..we will laugh with you..cry with you and

    encourage you too..we are even able private message when we need to, we also are from all over the world I'm in Australia...do.hope you have a lovely day..God bless you..😍😍😍😙

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  • Posted

    Hello Amanda

    Welcome to this site, and thank you for your post. I think Bronwyn and Christine have given good advice. I have never fallen but have had moments when I have no idea where I am even though I've lived near this town for about 15 years (I'm in Wales by the way) but it thankfully doesn't happen much. And yes, stress is the worst thing for our condition, so even when things happen you have to try and stay calm and tell yourself that everything will be ok, because it always is in the end. Be kind and gentle with yourself always.

    Hugs

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  • Posted

    Hi Amanda

    I have had alot of falls over the years when I go out I go out in a wheelchair as I have other problems as well. But I have only fallen indoors I had a very nasty fall and bruised my feet and the whole of my legs I was black and blue for several weeks and having to keep my legs up to help healing.

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  • Posted

    Hi Amanda welcome to the forum. I have had fibro for 10 years only diagnosed last year. since having fibro I have had problems with balance and quite a few falls. also problems with memory words coming out wrong putting milk in washer instead of softlan getting words mixed up.thats due to fibro fog. my advice is where the fall is concerned is see your gp. a month a go I fell at home I had numbness down one side. I recovered with in 2hrs. spoke to my gp she sent me to hospital for tests I saw a dr at hospital he diagnosed a mini stroke. If ever your unsure on anything its always wise to see or speak to a gp. fibro throws so many symptoms at us. its hard to know at times whether is fibro related or something else going on. take care x
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  • Posted

    Yes I relate to falls to.  Balance is a big issue.  Plus if trying to multitask in the brain department, it seems to create a disconnect to the feet, or the motion of taking a step.  We think we are taking a step and we actually aren't, and down we fall, with little to no reaction time.

    Word fumbling and being forgetful is all commonplace with the condition to.  (Same with head truama issues, so you can say you know how they feel!)

    Key thing to do is...'just accept you have these tendencies and to learn to be mindful.  DO NOT beat yourself up or get stressed over it, it won't do you any good to do so.   Relax, and just take your time, and also if you lose your words, don't panic, have a giggle at yourself and say 'ooops, lost it, oh well, it'l come back later'.... And leave it at that..  The more relaxed you can become in 'your acceptance of these issues, a huge chunk of stress is out of your life, which means the ultimate...you won't flare up as bad'...!!!

    All the best...xx

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  • Posted

    Awww thanks guys x thank goodness I'm not alone...I have been through a period of stress this past few months so perhaps it's catching up with me.  Three months ago my own doctors surgery who I started working at in the pharmacy did not renew my contract after 6 months probation ( talk about awkward now going to see them ) making excuses up and it was a messy situation and I feel they ganged up on me to get me out.  Anyway I now am back working for the pharmacy I worked at ten years which I am very happy about as I was not happy working with the unpleasant staff at the doctors anyway.  Such a mess and I don't think the GPs are very understanding of fibromyalgia anyway ( I saw things) and makes me wonder if they based things on my medical records!! Anyway I am a firm believer of looking after myself and speaking to people who have been in the same position as UK doctors are pants at fibro 😆 stuff.  Anyway I will keep an open mind in this and if it continues I will get it checked out but demand to be seen by a specialist not just the GP x I guess Christmas shopping is better online than in a busy centre...I have learnt my lesson x much live and hugs guys 
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    • Posted

      Oooooo' you are soooo assertive amanda so am I..😁you

      really do have to take your health into your own hands for sure..well done you, keep it up you have to, its sooo good to learn all you can and see the doctor totally informed..certainly made my

      doctor get more knowkedge on fibro, be blessed have a lovely day..😍..

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  • Posted

    WOW gosh... was really hoping to read Fighton's posts but they are deleted..?  Oh poo....  :-(
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