Was wodering if anyone has heard anything about Shortie79 after having her pancreas removed.

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Hi was wondering if anyone has heard any news about Shortie79. This young woman was having her pancreas removed on 1st August. I don't know her email address or anything but would really like to know how this young woman is coping after this huge operation. Anyone have any information on this please get in touch, thanks in advance.

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  • Posted

    Yes. Shortie's surgery has been delayed and she's fighting a mountain of paperwork.

    You can message her directly by going to "Messages" link above.

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    • Posted

      Hi vedawns i really appreciate your reply and i am sorry to hear this. I have messaged her through this. I tried in the messages but couldn't find out how to reply to her. Is there an email for her. Thanks again

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  • Posted

    You're super sweet! My surgery was delayed and then delayed again! I currently do not have a surgery date. I had my consultation back in May and they told me the only reason it would be canceled would be if there was a trauma patient. Well the night before my initial surgery date, they called and told me the islet transplant team was double booked and they were rescheduling me for the 15th. A week before the 15th the coordinator called and stated she needed an admissions contract and she couldn't proceed without the contract. The next day I contacted the admissions department and inquired about the "admitting contract." The admitting department stated there's no such contract. I called the coordinator back, etc. She then tells me it's not an admitting contract but a Letter of Agreement between my insurance and the hospital … even though my insurance has approved the surgery they want a contract stating my insurance will pay for the surgery. Then the coordinator states I will have to see three more specialists before she will reschedule my surgery … I asked her why wasn't this done in the three months time since my consultation was back in May and all she could do was state she didn't know it was needed. I asked why I had to see the specialists and she couldn't answer those questions either and then I said I didn't want to see more doctors because it's hard for me to find a ride and travel over two hours due to a different medical condition. She said if I refused to see them they would refuse surgery. I drafted an email (cced my attorney) and put our conversation in writing asking for the specialists names and reiterated how they would refuse surgery. She responded with the specialists information and stated they were now recommendations (not requirements) and the surgeon would do the surgery once the contract is done (they cannot deny treatment, it's against the law and she did it in a way that causes duress …). She called me yesterday inquiring if I have spoken with the last specialist and I advised her I was told they would call me back Tuesday (yesterday) which they didn't but I didn't want to wait on an additional department for my surgery. I already have a referral, spoken to a local specialist in my area and wanted the status of the Letter of Agreement. She didn't have a status update for me. I guess I am still used to working for attorneys, nothing can get completed until paperwork is filed … I'm having a tough time dealing with someone who has no answers to any of my questions, says she coordinates surgeries all the time but didn't know anything was needed to coordinate my surgery. I'm usually a positive person, but the light at the end of my tunnel is becoming dimmer. I'm stressed out and as you're aware, stress is not our friend. I'm trying my best to keep my cool but I have called my insurance to get information because this coordinator doesn't know what she's doing (might be my opinion, I'm not sure) I do know I got more answers from my insurance than I got from her.

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  • Posted

    Hi Shortie79 what can i say about this predicament you are in. I am so sorry that this is what your up against with the medical professionals. You must be in a state especially getting all hyped up for this huge operation and then they cancel, it's a disgrace. They are not totally understanding of what your going through here and probably passing the buck. I just feel the communication has gone wrong somewhere along the line. I am really gutted (excuse the pun) for you as i thought you were recovering by now. All this paperwork and recommendations are a joke when someone's mental and physical health is in jeopardy. This must be so upsetting for all your family because they will be extra worried about you once again. Please try and keep yourself as healthy as possible and as less stressed as you can in this situation. I am rooting for you once again and let's hope this will be sorted as soon as possible. I do hope your husband and kids are keeping well and your getting some free pain time with your family.

    I was back at the hospital yesterday to get some investigations on my pain so hopefully i will find something out on this within a few weeks, fingers crossed. Grandkids are amazing and are keeping me busy and tired at the moment but wouldn't have it any other way, my time with them is crucial.

    If you ever need to chat or vent please get in touch anytime. Keep me posted on this and i will keep checking to see how your getting on. Take care my friend and keep positive.

    Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

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    • Posted

      Thank you! I have been rescheduled for October 3rd but this time I'm not getting excited for recovery. My family and I were all mentally prepared and pretty devastated when it didn't go as planned. However, everything happens for a reason and I now know I needed to be here for my son, so I'm glad it didn't happen. I met with an Endocrologist today and was advised when you have a thyroid condition it can cause CP. I learned something new today … it's not what happened with me but makes a lot of sense. I enjoy learning new things, even if it's out of my comfort zone. I'm glad you're able to spend time with your grandbabies, that's very important! They will cherish the time forever! They are lucky kids! I hope all is well with you and your health, I know it's hard but keep up the great work and just take one day at a time. I sent you a private message, it took me a minute to figure it out at first but once you get the hang of it, you will know how to send messages too. Take care!

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    • Posted

      Fantastic news! Although this has been cancelled before forget all about that and now focus on this as if it was your first date. You must once again get that positive attitude for your recovery. Your family love you and will again support you through your recovery. They need you as well as you need them. Your family will be so proud of you especially what you've come through and are continually to fight against. I do believe illnesses test your strengths to the limit and in between if there's a small bit of positivity and hope then that makes all the difference.

      Yes i totally understand learning is a great boost even if it is helping someone else and not you. Strange thing that you said about the thyroid causing CP i always thought there was a connection. How did your thyroid problem get diagnosed and what where the symptoms?

      I'm just taking things day by day and if i can do something extra it's a bonus to me. Pain is always there like you know but for some reason we do get on with it and there is always that hope that we will totally overcome this.

      I do hope your as well as can be expected at this moment in time. God bless to your husband and kids. Keep me posted on this big day. You are an inspiration and i truly mean that. Take care my friend and keep strong.

      Was trying to send a picture of my beautiful family but for some reason i don't think it has attached to my message. I will continue to try.

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    • Posted

      You're such a sweet positive person. Regarding my thyroid, If I recall correctly (my memory is horrible when it comes to time frames nowadays) I was having a hard time losing weight back in 2009-2010. I was going to the gym 5 times a week, eating very healthy, I had lost some weight but my doctor knew my routine and knew I should have been losing more weight with the program I was following. She checked my past medical record and noticed that when they checked my thyroid they only checked the T4 and TSH. She explained there's autoimmune diseases that can make your thyroid appear normal. She ordered another test checking my T4, TSH and T3. With that particular test it revealed I had Hashimoto's thyroid autoimmune disease. All I have to do is take a pill for my thyroid to function normally. I'm ALWAYS freezing, fatigued, have dry skin and my hair will get brittle or fall out and it's part of the thyroid condition (my hands get especially cold and feet too). When those symptoms start acting up I have my thyroid checked but normally my doctor checks my thyroid every three months. It wasn't until I saw the endocrologist that I learned there's a connection but now I know. The thyroid didn't cause my CP but it does explain a lot, I feel like I am connecting all the dots.

      I'm pretty fortunate and blessed to have a supportive family but it does take a toll on them as well. I really just want to get everything over and done with, so I can start the recovery and be there for my kids. My youngest is a senior this year and my oldest just started college and his first job. If everything had worked out then it would have been easier but like you said, sometimes we're tested and I feel I was tested. I am hoping everything works out this time but if it doesn't I know there will be a reason. I hope you're not in too much pain, there's not much we can do about that but learn to live with a new normal pain level. Take care my lovely friend and stay positive. I'll keep you posted!

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  • Posted

    Hi bubaj8, it looks like you figured out how to respond in the main discussion. it should take a bit longer before it shows up. I agree that the usability of this forum could be improved.

    When you get this, scroll through the whole conversation until you see Shortie79 and click on the "envelope" "Message" link.

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