1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

wast of time

Posted , 11 users are following.

debbie_1966
debbie_1966

I have just wasted an hour and half at an appointment at pain management to be told I had to pace myself do light exercise use my core muscles relax n avoid stress after having pain of some sort for over 30yrs I think I already know this so no help at all rant over

Gentle hugs to all xxx

3 likes, 19 replies

19 Replies

Next
  • kaz_40
    kaz_40 debbie_1966

    Posted

    Hi Debbie1966 so sorry to hear youve not got on well at the pain clinic. cant believe what they said to you, as if you didnt already know all that honestlyrolleyes. You Take care gentle hugs xx
  • Boqer
    Boqer debbie_1966

    Posted

    Hi Debbie

    That's terrible! You get all geared up to go somewhere, and hope to find a little help in things, only to be told that. It's like they have no understanding at all. I'm really sorry.

    Gentle hugs

    • kaz_40
      kaz_40 Boqer

      Posted

      hi Boqer How are you? hows things with you hun? Hope your not in too much pain. Im in agony with my back at the min but plodding on. hope you have a good day with not much pain take care gentle hugs xx
  • loxie
    loxie debbie_1966

    Posted

    what a bunch of idiots! I just love hearing 'you must pace yourself' when a lot of the time we're  unable to do absolutely anything at all, let alone over exert ourselves.  Secondly, they should know by now that fibro flare ups aren't predictable - there are days when I do almost nothing and the slightest thing (like taking a shower) triggers it and other days I can go to work, come home and cook dinner etc., and am not so bad.  These are supposed to be the 'experts' eh.  I'm pretty sure half of my symptoms are due to the stress of having to deal with a totally ineffective and useless health care system - the frustration of it all can cause illness on its own.  So sorry to hear you had such a wasted trip and I bet you had to wait ages for that appointment too. 
  • Suzi59
    Suzi59 debbie_1966

    Posted

    Hi Debbie....How awful but not shocking!! Unfortunately, it's a long process to find that right doctor...maybe do some on-line research, ask around on various FMS forums, you might be surprised on what info you may get...hang in there and don't give up!  "If at first you don't succeed, try, try again" words I live by !....I do however know just how frustrating it is...In the meantime, you will always find comforting support here on this site...Hoping you feel better soon sad gentle hugs 
  • mark41707
    mark41707 debbie_1966

    Posted

    Hello Debbie

    Know exactly where you are coming from?

    Dont worry you are not alone, have been fed the same thing over and over again?

    They have"nt the courage to tell you that unless you pay for treatment you are not getting anywhere? cant imagine how much money is wasted on these clinics to tell people the obvious?

  • janet26165
    janet26165 debbie_1966

    Posted

    Hi Debbie. I had a similar experience to yourself. I waited for 4 and a half months for an appointment at the pain clinic, to be in and out in 5 minutes, having been told I had chronic pain and to just get on with it and that I would put weight on so be careful what you eat. End of appointment and discharged as they couldn't do anything for me.

    Nevermind find the next doctor and onwards and upwards.

    Take care and gentle hugs

  • debbie_1966
    debbie_1966

    Posted

    Thanks everyone for your replies and support my gp is great but sent me there because I am allergic to so much he is limited to what he can give me and thought they might help I will just go back to him n c what else he can suggest

    Gentle hugs everyone xxx

    • Meg53
      Meg53 debbie_1966

      Posted

      I know what you mean about being allergic to everything, even paracetamol sets me off. Have you tried Lyrica it seems to be the only

      drug I can tolerate and even then I have to take a very low dose, which  cuts the pain by a bit. Every other drug they tried had too many side effects in many instances the opposite to what they should, they would give me insomnia when they should make me drowsy. It sure is a pain isn't it. Are you allergic to all the chemicals in the environment?

    • debbie_1966
      debbie_1966 Meg53

      Posted

      Not tried lyrics might ask GP about that only allergic to some chemicals not all but yes it is a pain thanks for ur suggestion

      Gentle hugs xx

  • Meg53
    Meg53 debbie_1966

    Posted

    Wow how annoying and frustrating. Doctors still seem to be in ignorance about the pain mechanism in our bodies and how to treat it, they are only just acknowledging that Fibro exists even though it has been round for centuries.

    I still hold out hope for these new medications they are testing, that maybe they will come up with a drug that helps with minimal side effects. I have decided that in the end it is up to us to keep abreast of the research online because no one else seems to really care. Cynical yes, frustrated yes!

    Enjoy your weekend and I hope it is relatively pain free. xxx

  • bronwyn97278
    bronwyn97278 debbie_1966

    Posted

    Yep......the thing that Really gets to me is that "they Never tell us How to Not get Stressed/avoid stress"....our lives ae made up of stress ....that's how most of us got here in the first place......STRESS...............Bron
    • Meg53
      Meg53 bronwyn97278

      Posted

      Yep stress is part of our internally wired urge for survival. What is more they tell you to meditate and then you read statements from other experts that meditation can cause psychosis. Go figure???
    • debbie_1966
      debbie_1966 bronwyn97278

      Posted

      Yes cant avoid stress when trying to live a normal life x

      Gentle hugs xxxxxxx

  • christine26761
    christine26761 debbie_1966

    Posted

    That's about it deb..they don't say much more than that...try not to stress..it will only make your Fibro worse..gentle hugs ..be blessed, have a lovely day..:-) xxx
Back to top
Next

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.