Weak bladder and prednisolone use

https://patient.info/forums/discuss/reducing-pred-dead-slow-and-nearly-stop-method-531439

You could try this. It has worked for a lot of people.

Do you have polymyalgia rheumatica or is the pred just for the asthma?

After 13 years it is likely that your adrenal function will be very slow to return to normal, if it ever does, and you may need to remain in a low dose of pred as a replacement therapy.

hi

ive been on sterouds for nearly three years for PMR and GCA. I too have tried to taper down but each time i go lower than 5 the pain returns to my neck, arms and legs!

I have stayed at 5mg fir nearly 6 months wigh some side sffects but tolerable!

I am investigating both turmeric and CBD oils before i take the plunge!

All the things i am reading are positive so, what have we to lose?

Thank you for feedback and information on tapering off steriods. I'm only on prednisolone for asthma - but this is better controlled with 2 weekly injections of melpolizumaub. I will be very cautious with trying the reduce prednisolone and know i might not completely manage this - but will try to very slowly taper using the information outlined on the link. i will post an update in about 6 months time regarding how I get on. Very best of luck to anyone in a similar situation.

Hi, I had not seen your email until today which I see is 4 months later now. You are the 1st person that I've seen that mentioned the bladder problem. I thought it was just me. I had 2 surgeries in the past 6 months to correct my 100% incont5inence that came about 1 year after I started Prednisone. I am now on it almost 2 1/2 years & it took me 18 months to get from 7.5mgs. to 5mgs. which I have been on for a while. I went down just 1/4 mg. at a time & stayed on that for 2 or 3 months since my body let me know loud & clear after I tried for a few weeks that it wasn't ready so I am back on 5mgs..My doctor wanted me to go down 1mg per month & go off the Prednisone all together since I am loosing my immune system & got the flu in Oct. & again in Jan. with the scariest flu of my life with my lungs filling up so fast that I felt like I was drowning .It was terrifying & I got a strange illness that the doctors have head of symptoms wise but don't know what it is with something attacking the nerves ,at times every 5 seconds, in my chest,then to my back,& up into my head & felt like electric shocks going into my body about 6", My fiance could feel my muscles contracting. When I had the urethra /bladder surgery my Uro/Gyno said when he went to sew me up inside that my flesh was tearing & he had to do 2 microsurgeries & stitch me from the outside/in. I also had the weight gain of 45-50lbs.which is devastating since I was thin my entire life & I eat like a bird so it is not like I can go on a diet. 95% of my thick,long hair fell out & now that I have 5" of new hair that is falling out. My skin tears & bruises so easy my tongue swells up on the sides with painful lumps too often. It is hard when my lifelong friends have jaw dropping faces & are too shocked to talk initially even though I warned them in advance of my Cushing Syndrome body & the fat face. I read that Prednisone is a lot harder on women since it transforms our body into a male shape & gives us the camel hump that comes out at the base of our necks. I hate Prednisone but am grateful that I can walk ,stand up ,& sit again without screaming. Best wishes to you with your tapering down.

Yes, He is sure that is the reason for my major urethra malfunction, especially after seeing my tissue inside as he attempted to sew me up & the stitches tore right through the tissue inside . My tissue is breaking down on the inside & the outside. Even my G.I doctor went to tear open the scar tissue that he has to do once or twice a year in my esophagus with an endoscopy 1st & then the balloon that inflates & tears open the scar tissue so I can eat without obstructing. Last year he took one look during the endoscopy & said had he put the balloon down & inflated it that my esophagus was at risk to tear completely open & that I could bleed to death before they could fix it. It is a congenital defect & at times I obstruct water or a soft food like a bite of mashed potatoes so it has nothing to do with me not chewing my food enough.