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Week 10 on Cabergoline - does anyone else feel tired and dizzy?

Posted , 11 users are following.

sophie58663
sophie58663

Hi,  

I was after some help - I was diagnosed with a Pituary Tumour which was producing too much Prolactin.  I've been put on Cabergoline and am on week 10.  

I am spending a lot of my days lying in bed, muscles ache and I go for days feeling tired and then I'm Ok again.

I often have a dizzy feeling which is very hard to explain - I'm still able to function but I'm very aware I don't feel quite right.

Since the diagnosis I'm also finding it hard to know which emotions are real or just my hormones.  I get very stressed easily and also angry.

I'm really struggling with this whole thing and although I'm not alone - feel very isolated and perhaps even depressed to be honest.

I'm freelance and have taken time off work - so perhaps this is making it worse - however I'm scared of taking on work and being too tired to do it properly.  

Any help or advice would be really appreciate - just be good to speak to someone who's had a similar experience.

Thanks

Sophie 

0 likes, 16 replies

16 Replies

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  • elizabeth40362
    elizabeth40362 sophie58663

    Posted

    Hi Sophie,

    I have just joined this forum.

    I have been diagnosed with a prolactinoma for 4 years. I had been prescribed Cabergoline.

    I have had these symptoms general lack of strength and joint aches. Loss of balance.

    My consultalt has advised to discontinue use of Cabergoline and see how I am in 8 weeks, 7 weeks to go. Currently I still have all the symptoms also now nauseous and breasts aching.

    Does this sound familiar to anyone?

    • joe6799
      joe6799 elizabeth40362

      Posted

      Hi Elizabeth, I take cabergoline and have joint aches, The testosterone injection helps counter the strength bit but the joints still ache. Have you got to grips with this now?  
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