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This disease progression is awful. I've watched a sibling go through it and battle it into remission, [taking a year to do so] then seen it evolve with a vengence 8 years later to it's fatal end. It seems little is known about this disease, and not much is spent on studying it because of it's rareity. However, in on line research seems to show it is on an increase which would support that environmental exposures could be a factor.
My sibling was in great health and very active. Wegeners showed up shortly after he built his own house, and also started making a living doing tiling. Many of the mastiks, mortar, and grout used in tiling and contstruction has petroleum products in them. His past reflects Allergies another common denominator. Once in remission he went back to tiling, and later bought temporaputic beds that basically are petroleum waste products that create harmful outgassing from body heat. He did not know that at the time and within a few months the wegeners came out of remission. His little dogs also showed illness during the time they slept on the foot of these beds. It seems more than a coincedence that petroleum workers have come down with this dreadful disease. More studies should be done to determine the link between wegeners and environmental toxins.
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