Weight loss and fibro

Posted , 12 users are following.

Has anyone managed to lose any of the weight we all seem to have gained since diagnosis? Or am I destined to be Mrs Blobby forever? xx

3 likes, 17 replies

17 Replies

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  • Posted

    Ive put on loads of weight too and am eating far less and not sure how to get rid of it. As dont feel like excercising due to pain and brain fog.  Does any of this ever go away

  • Posted

    Haven't lost it but it is stable! I've got my Wii out, it tells me I haven't used it for 1596 days lol, I'm trying to do Zumba on it, started yesterday , I'll let you know how it goes! I think the weight gain for me is from lack of exercise or the right type of exercise. So far the dancing is less painful than I thought it would be, fingers crossed it works!

    take care, don't over do it trying to lose weight! 

    Gentle hugs

    S x

  • Posted

    I've gained two stone since September. Trying v v hard to lose but with a huge struggle xx
  • Posted

    Hi Jeanne

    I did try to lose weight using my wii and was doing so well, but my pains got the better of me and so the weight went back on. I also started zumba but had to give that up too.  So now I eating healthy and walking everyday and staying calm and positive so I'm hoping the weight will adjust itself in due course. biggrin x

  • Posted

    Hi Jeanne,

    I really like the honesty of everyone on this site,

    Reading this this morning has made me smile,

    I'm not that big but about a stone heavier than I'd like to be which is a lot I suppose when your only 5ft 2ins and small framed,

    I'm now gluten free and feel a lot better as my belly arms and legs have stopped swelling up, but although I eat healthily I can't shift my extra weight,

    My granddaughter has persuaded me to go to a kettle class with her next Tuesday so watch this space, if I don't return you'll know she has killed me off 😃

    Keep up some form of activity girls it's good for the mind although our bodies don't like it.

    Gentle hugs to you all.

    If you hurt after rub magnesium spray oil on your joints it's very good x

    • Posted

      What is kettle? I've got visions of women standing around doing the teapot nursery rhyme thing, you know "I'm a little teapot short and stout, here's my handle, here's my spout"! I'm sure that's not it but need you to boot it out of my head!
    • Posted

      Hi Shelagh6 referring to kettle bell weights now on the market if you google them you will see them as I can't load bear and struggle to even manage the groceries count me out the physio says I can improve my balance strength if I raise my foot to sort of hop but not leave the floor and near something to hold on to in case of fall but have bad pain and grinding of my right knee so limited fully on that side also pain in my ankles heels and all down both sides of my lower limbs due to nerve damage excruciating painful should be put down would even consider dignitas than the sad life fibro puts the body through swimming steam and sauna used to be my treat but now due to build houses where I went and being very part time cannot afford membership elsewhere so exercise out for me plus always have the other worry of foot and calve Spasm cramps if overdo it or get cold.  Even with summer coming upon us no getting away from being cold have my under blanket on in bed all year round as hands and feet never warm up.  Hope this helps you.  many tears do fall.
  • Posted

    I have lost 10 pounds since Easter despite being on pregabalin and largely wheelchair dependent - it's taken a big cut back on the number of calories that I eat (to about 1300) and I've cut back drastically on fat and sugar, having already been 'naturally' gluten free (avoiding the different-grain alternatives).

    Whilst I realise what works for me won't work for everyone, this is what I do in a typical day:

    Breakfast: Bacon, Eggs, tomatoes, mushrooms (minimal fat, I cut it off the bacon and use a little coconut oil to fry the eggs)

    Lunch: Salad, mostly greens, with tuna / chicken / ham / low fat soft cheese

    Dinner: 75g brown rice or medium potato, with fish / pork / chicken / <5% fat mince and plenty of veg

    snacks: fruit or veg sticks, plus a couple of squares of dark choc / very small piece of cake - something to keep my sweet tooth happy - i'm very fussy nowadays and will only put in things that are high in sugar or fat if i really, really like them!

    hope that's helpful.  i've had many years of thinking that i had to put up with the weight, but with some major determination, lots of prayer (necessary for me!) - and cutting back in small steps until i was eating what i wanted to be eating - i seem to be more in control of it. fat="" mince="" and="" plenty="" of="" veg="" snacks:="" fruit="" or="" veg="" sticks,="" plus="" a="" couple="" of="" squares="" of="" dark="" choc="" very="" small="" piece="" of="" cake="" -="" something="" to="" keep="" my="" sweet="" tooth="" happy="" -="" i'm="" very="" fussy="" nowadays="" and="" will="" only="" put="" in="" things="" that="" are="" high="" in="" sugar="" or="" fat="" if="" i="" really,="" really="" like="" them!="" hope="" that's="" helpful.=""  i've="" had="" many="" years="" of="" thinking="" that="" i="" had="" to="" put="" up="" with="" the="" weight,="" but="" with="" some="" major="" determination,="" lots="" of="" prayer="" (necessary="" for="" me!)="" -="" and="" cutting="" back="" in="" small="" steps="" until="" i="" was="" eating="" what="" i="" wanted="" to="" be="" eating="" -="" i="" seem="" to="" be="" more="" in="" control="" of="">

    snacks: fruit or veg sticks, plus a couple of squares of dark choc / very small piece of cake - something to keep my sweet tooth happy - i'm very fussy nowadays and will only put in things that are high in sugar or fat if i really, really like them!

    hope that's helpful.  i've had many years of thinking that i had to put up with the weight, but with some major determination, lots of prayer (necessary for me!) - and cutting back in small steps until i was eating what i wanted to be eating - i seem to be more in control of it.>

  • Posted

    Hi jeanne81532 on the topic of weight loss I have never been bigger than when Dr put me on gabapentin for which I finish the backward administration and will be prescribed medicine free bar Ibs and ones for b4 and stomach spasms/pain bus company and mebeverine and omeprazole for repeating of whatever I eat.  My last visit to the gp was totally full of my whole life and many professionals not listening to give me any quality to life have had the most horrendous week but on weight my GP wanted me to see a dietitian and said NHS will fund me and my son to go to slimming world bearing in mind that as well as me being ill I have two sons aged 12 and 15 the youngest was told he was morbidly obese and going in direction of gastric bypass if he can't turn around his battle with food as a consequence of constant bullying at school and first week back and cracking down on the strict calories I provide for him I find him eating for England and tears again Thursday evening this follows a further job rejection for me an appointment with pain rehab physio and OT for nearly two hours and trying to give me some breathing manoeuvres sliding my hands down my knees and wants me to try standing on one leg because my balance is swollen with 5 falls in so many months but because my body is disabled in many areas including my back, pelvis, left wrist/hand fusion and failed carpal tunnel release with no physical energy or body strength with full head to toe all trigger point fibro there is no corner for me to turn and back to no quality restful sleep the bowels and bladder in overdrive feeling sick all the time as much as I can manage to remember to drink and managing some fruit only to eat before the gabapentin I was 14/16/18 top half stomach gone up to 26/28 as had to purchase new coat just to get round that body part like a tent on me everywhere else but I also feel underlying there is psoriatic arthritis as before I was diagnosed August 2012 I reviewed foods to avoid for this and hit the nail on the head as to why fast food sent me fast track to the toilet also do not eat bread or any potatoes as for bread constipation prevails and potatoes go right through too I drink decaf tea or fruit teas lift but am in a very weak condition with agony 24/7.  I envy all of u that result yo baths but because birth my hands are in effect totally finished due accident no respite is this for me do not even feel safe in the shower with my feet constantly moving even on a non slip shower mat and have a bath board as cannot climb out and in truth never even feel clean and frightens me that I still smell of course my last child was emergency caesarean so carrying extra weight and sweat all lies in scar fold under big belly I provide my own incontinence pads and put a dry wipe in this fold every day sometimes twice a day but will bursting bladder and unpredictable bowels also know next it will be double incontinence.  Have pain psychologist to come onboard next but have no hope nobody lives my life and fibro battle outside looking in nothing looks wrong
  • Posted

    Hi Jeanne:

    I was only diagnosed this past Oct & have always been extremely active. There have days, I have drag myself to exercise but after I always feel better & my body movement are so much easier. All my drs have said, you have to keep a routine for your physical & mental well being...All I can say is try to team up w/ a GF & you both can keep each other motivated !!!

    Smiles & Giggles,

    Valerie

  • Posted

    Difficult one but I have managed to lose 5 inches round the waist in a few weeks just cutting out refined sugars and gluten. No diet as such - just avoiding the above and also asking myself whether or not I need the food i.e. am I really hungry if I am eat it, if not put it back!  Also if you are full stop eating - sounds obvious but how often do we eat everything on the plate because we believe it rude not to. I just keep asking myself those questions and although I couldn't tell you how much weight I have lost as I never weigh myself I know I have lost many inches and to me inches are more important than weight. Good luck.
    • Posted

      Hi Maggers,

      That's Awesome...keep the good work up !!

      Valerie826

  • Posted

    Hi Jeanne...try googling PALEO.. I dd it newly 3 ys who..and my blood tests are awesome.....it's not really a diet it's a lifestyle....no sugar..processed food..gluten etc.....especially bread. Pasta etc..even white rice...but there are other ways to have similar....there is just soo much that is ok to eat too...the wright drops of plus it gies on you if need...it's extremely healthy tooo...hope you find what your looking for..be blessed, have a nice day...:-) xxx
  • Posted

    Hiya Jeanne,

    I put on a massive 7 stone over a 2 year period following prolapsing a disc, the start of my rheumy problems and then Fibro.

    I went from being ultra active, walking to work every day, hiking at the weekends, playing with the kids to nothing in the space of 6 months.

    Last year I started to try and lose weight with Weight Watchers through my GP as they were saying the massive weight gain really wasn't helping my joints (I knew that but how do you exercise when you can barely stand up)

    I gave up on Weight Watchers as it annoyed me that after 6 weeks I'd lost nothing and the leader was saying I was doing something wrong as EVERYONE loses weight on the points diet.  

    I decided to do a detox and drop my medication for 10 days just to kick start my metabolism and try and rid the toxins building up from constant medication.  I used an Aloe Gel detox and lost 15lbs in 10 days!

    I then went on to lose another 2 stone over the summer just by watching my intake, cutting out the sugars and wheat etc.

    I've been quiet ill since September so my weight loss stalled but I'm glad to say I've only put on 4lbs and I'm still immobile most days.  I'm still Mrs Blobby (more so because I'm covered in Uriticaria/angiodema swelling most days - another fab illness) and I have probably another 5 stone to go to be the weight to height ideal but to be honest I haven't been that weight since my 20's so I'm not killing myself to get there.

    Most of my medication are known for weight gain so I'm just taking one day at a time and try not to beat myself up for the odd chocolate bar!

    • Posted

      Treats are vital...I just wouldn't survive without treating myself...such a feel good. That's why I do the 80-20 Paleo lifestyle...gotta admit though some weekends I do maybe 50-50..lol...but that's ok...being kind to me.is fine...lol:-) xxx
    • Posted

      Awesome outlook...Way to think & manage each day as U go !!

      Smiles & Giggles

      Valerie826

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