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Weight loss in PMR

Posted , 16 users are following.

robert33625
robert33625

I recently ,"(2 weeks ago) was diagnosed as having Polymyalitis rhumatica, after suffering a sudden attack of symptoms a few weeks before. I was put on a low dose of prednisone fir 5 days and felt much better. Still feel good if I exercise a lot. My main concern is that even though my appitite is good I am loosing 1 to 2 pounds (1/2 to 1 kg) a day. Since I am 5ft 11inches and already down to 142 pounds from me normal 155pounds this can not continue moer than a month or I will weigh less than 100 pounds. I wonder I any patients have had similar experience and if so what happened? Did it stop?

0 likes, 25 replies

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  • jean20806
    jean20806 robert33625

    Posted

    Hello Robert,

    I too have suffered weight loss through my pmr.

    I have just finished 15 months being on the steroids and I have lost just over a stone in weight

    I have also lost muscle mass in my arms and legs, my skin is thinner and dry , but I was pleased not to be on the steroids, thinking this was the cause of my weight loss rather than weight gain, but now the pmr has returned not as bad as the first symptoms but still quite painful .

    I will not be seeing my rheumatologist until the beginning of June.

    How are you now

    Jean

  • jean20806
    jean20806 robert33625

    Posted

    Hello Robert I do have suffered weight loss through my pmr I have been on steroids for 15 months and lost a stone in weight I am really trying to put the weight back on.

    my pmr I thought had left me , but it has now Returned I will see my rheumatologist at the beginning of June . I am drinking protein shakes with peanut butter and protein powders and so far I have gained 1 and a half pounds I hope you are managing your weight.

  • christine_64736
    christine_64736 robert33625

    Posted

    I was diagnosed with polymialga rhumatica on 20 June I am on 15 ml a day of prednisone I am not gaining weight am losing it
  • jean20806
    jean20806 robert33625

    Posted

    Hi Robert

    I lost weight on long term prednisone. But weight loss started almost straight away. I lost a stone altogether after 15 month's . Now gained 3 lbs but pmr flared up again. I was given a one off injection and am OK three week's later. Fingers crossed.

    I drank lots of high protein drinks during my weight loss time and I believe it helped to keep the loss down.

    Good luck and try not to worry. Eat healthy

    Jean

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