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Okay, so i've had this condition for years now although only recently had an almost diagnosis. It's taking time, as you all know too well!!
I'm concerned though that something else may be wrong. I've had so many different blood tests etc and nothing every really flags up, but i've been steadily losing weigh now for a year or with no real explanation as to why. I don't eat alot, but i don't eat healthy 24/7 and do very little excercise due to my fatigue and pain. Everyone i speak to says that weight gain is more common in M.E/CFS cases. Has anyone with these conditions every experienced weight loss for no real reason, and should i mention it to my GP?
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My weight has stabilised now that I eat gluten free and take a good probiotic in addition to other supplements.
Over the last 6 months I'm losing weight and I'm not doing anything to try and lose it. It's a complete turnaround. And I thought something else was going on like my thyroid. I found out the weight loss is a symptom of CFS/ME. But in 20 something years I didn't have til now. I have also heard that symptoms change over the years. So for now I'm letting things go and chalking it up to this illness. If it's something else something will let me know.
Also, one of the markers to DX this illness is all blood tests are negative. It's frustrating and can drive you crazy, but it lets us know we have this.
Hope this helps
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