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weird dizziness ?

Posted , 5 users are following.

lyn48554
lyn48554

Hi people.

Has anyone else experienced this ? In 2015 i started having funny turns (i call them funny turns ,not because they are funny at all because they are not.

I get this weird dizziness ,the room does NOT spin .i will try to explain the best i can.

First of all i get neck pain (i have arthritis in my neck ,then i get a kind of muzzy head feeling ,sometimes it feels like a head ache ,other times it don't.

Sometimes it feels like nerve pain in my head ,this is not a severe pain .

Then if i look to the side and bring my head back again to eye level ,it seems everything takes a second to catch back up to eye level again. When i walk i feel off balance when this happens. it can last a few mins or a few hours . It can happen when i turn over in bed ,although this is rare ,it mainly happens while im relaxed watching tv it will suddenly start out of the blue. This happens a couple of times a month ...I have seen doctors ,i have had my eyes tested ,i have had blood test , I am waiting for new glasses as i am quite short sighted but i dont think this is my eyes ...I have ear pain sometimes and ringing in my ears .the ringing in ears have only just started recently ....i have not had an mri or ct scan , i have not been refered to ENT either ,i am so worried this might be something like a brain tumour ,i know i should have a ct scan or at least see a ENT doc but im to anxious for this as i have always suffered from health anxiety . just wondering if anyone else has had similar symptoms and can throw some light my way please .

0 likes, 4 replies

4 Replies

  • hollyanna1
    hollyanna1 lyn48554

    Posted

    i would skip going to the ENT, as they have little knowledge it would seem of vestibular issues.

    the "visual catch up" youre experiencing sounds like something called saccades. (you can google that) it doesnt sound like a brain tumor but it does sound like you have a vestibular issue going on.

    (im enduring hell with pretty similar symptoms as you except mine doesnt go away its constant) and found out i have damage to my left ear-vestibular nerve.

    i went through 5 ents with no help before i finally went to an oto-neurologist (i dont know the exact spelling so forgive me) and he finally diagnosed me with 32% damage, and something called vestibular hypofuntion, and sent me off to vestibular rehab. im still struggling a bit but i was told this would take time especially because it took me so long to get help. they will send you for an mri and then a hearing test and then a caloric test and a VNG to test your vestibular (balance system, which includes your eyes).

    try to just be persistent and get yourself some help, i know its frustrating and i suffer with pretty awful anxiety but please try to keep the anxiety as low as you can get it because it can exacerbate the symptoms. easier said than done i know. but do advocate for yourself and get you some answers.

    • lyn48554
      lyn48554 hollyanna1

      Posted

      Hi .Thank you so much for your reply and advise .

      will i be able to see a neurologist via the NHS ? is this what you did? you say you have your symptoms all the time ,omg poor you ,i have mine every now and then ,maybe 2 a month . i am really scared of having tests ,i am a complete nightmare and baby when it comes to tests ...you dont say how long you have had this for ..are you still having treatment ? and is it working for you ?

    • wil87982
      wil87982 hollyanna1

      Posted

      hello im so sorry you arw going through this i seem to be having something similar and im absolutely terrified. i can t find the "new post" button so forgive me for writing here.

      i have been feeling the same (as in the room is not spinning but i am

      it happen this evening i felt a little "off" (as in it felt i was slightly dizzy and put it down to anxiety) . But it got worse and worse to the point where if i tipped my head forward i would get diZzy and if i tipped my head back i would get dizzy. i have been sitting for hours in an armchair terrified to move. i had to use the bathroom earlier and asked my hisband to help me as i didnt feel i could walk. again i was dizzy (with him shouting at me that it was all anxiety). he is happily asleep after telling me im a drama queen and i actually want to die i am THAT terrified of dizziness) . I dont know what to do and i dont know where or how to post this properly . i do apologise and hope u feel better. maybe you can let me know how to post a new subject? thank you

  • evelyn70125
    evelyn70125 lyn48554

    Posted

    i have been struggling with the same exact thing for almost two years now and still have no answers to what is going on, i have been to every kind of doctor also

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