Weird eye problem, Stroke? Graves? Doctors have no clue :(

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A couple of months ago I started having some eye issues. I have a very high prescription and normally use soft contact lenses. It started off in my right eye, it got very irritated, red and red and dry so I completely stopped wearing contacts and switched over to my back up glasses.

I noticed my eye was looking off, maybe swollen or like lazy eye. the more I looked i thought it might even be popping out a bit. What really freaked me out was that I thought I had lost vision so I scheduled appointments with both my doctor and an ophthalmologist.

THe doctor checked my TSH, for thyroid problems as I have also been having issues with sore, scratchy and itchy feeling in throat for almost a whole year. TSH was normal.

The ophthalmologist confirmed that my prescription hasn't changed and determined that the blurred vision / double vision was a result from allergies and severe dry eye. I was prescribed ketotifen for the allergy and Systane over the counter for the dryness.

My primary care diagnosed my with blepharitis and prescribed erythromycin antibiotics for my eye. It has been about a month on these meds and I have not seen any results. I am still having double vision in my right eye (i think it's gotten worse) and it's still very dry in the mornings. it looks off to me, almost like its misaligned or crooked. I don't know what could have caused this, hoping to get recommendations as to where to look next or any tests that might provide insights? image

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  • Posted

    Honestly in the picture,your eyes look normal to me,if I were you I might ask for a referral to a neurologist if you are worried.

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    • Posted

      Thanks Lee,

      The doctors have said the same. I guess it is not as noticeable but since I look at my face everyday, it seems more severe to me. My vision impairment may also be exacerbating the situation. My concern is mainly not being able to focus my right eye. It is difficult to read text books for school due to the double vision and even driving is hard to do at night, the lights are stacked on top of each other.

      I will definitely try to see a neurologist. My doctor suggested a neuro opthamologist, hopefully they can figure out what is going on with my eye.

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  • Posted

    In August of 2018, I looked to the left and backwards. When I looked forward again, my eyes were no longer working together. I had double vision. I have been to neuropthamologists, eye oncologists, countless opthamologists, regular doctors, chiropractors, etc. They gave me 13 diagnoses. I've had an MRI. The only thing that the doctors mostly agree on is that my left eye has something on the muscles behind it. It also is happening to a much lesser extent to my right eye. My left eye has little movement which is why the double vision occurs. My left eye was also swollen. My daughter started researching medical eye journals online and found a rare eye disease called ocular myositis. A doctor gave me prednisone and now I am taking theracurmin. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2699981/ The swelling has gone down. The eye can move somewhat, but I have to work on it for it to move. I am looking for a vision therapist right now. But, progress has been made. 😃

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    • Posted

      Thank you for sharing your story, I will definitely look into that. I feel like there are not enough eye specialist out there, it's really hard to find someone who even remotely has a clue as to what's going on. I'm glad the treatment is working for you, I hope you make a full and speedy recovery 😃

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  • Posted

    I've kind of lost hope with the medical field,most won't even consider what you research on line,I'm thinking,they don't research on line? what's wrong with that picture?

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