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Weird Feeling almost every day for 3 years

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ana61102
ana61102

Hello everyone,

I want to discuss my strange feelings which I've had for 3 years now. It is difficult to tell how its started but the feeling is following - I feel a weird vibration/sensation feeling around my chest area which progresses to the head, includes dizziness and lightheadedness, sometimes it is followed by fainting (It happened 4 times when I completely fainted). I have this almost every day, did some tests and everything is fine except for hemoglobin and vitamin d (both pretty low). Different doctors are telling me different problems like one told me it might be anxiety (which I am not sure, I don't think I am so anxious I can faint (If I am at all), one told me It might because of the body rhythm and etc. 

Does anyone ever have the same problem? Do you have any idea what that might be or where should I search for the problem?

0 likes, 5 replies

5 Replies

  • kenaz
    kenaz ana61102

    Posted

    I am sure sorry about your situation Ana. I am a 71year old male and have had similar symptoms for 20 years. The doctors all have different opinions and no on has taken it to serious till I blacked out in Sept and fractured my skull. I was given the Tilt Table Test and shows I have Autonomic Nervous System Dysfunction. That doesn't help much because my doctors don't know anything about it and don't know where to start. I am a disabled US veteran and I have to get approval from VA to get anything done, which is another whole nightmare. Please don't stop pushing for answers, we need to be our own advocate.

    I hope you get answers and some help. Doctors are quick to push off your needs if they don't know and most won't admit they are unaware.

    Blessings, Ken

  • mattchu84
    mattchu84 ana61102

    Posted

    get a full check for anemia if hemoglobin is low , also ask for a ecg and echo at the least to make sure heart function is normal , i dont think this is anxiety at all, if you faint it warrents investigation , defo get heart problems ruled out then push for a tilt table test and possible checks on hormones( glands) to rule out problems there.

  • LongJourney
    LongJourney ana61102

    Posted

    Search this entire site for Dysautonmia and POTS to read if other's symptoms are similar to yours.

  • debbie1226
    debbie1226 ana61102

    Posted

    Ana,

    I have been having similar symptoms since Dec 24, 2016 and see a syncope heart doctor and neurologist. I had 2 attacks at Cleveland Clinic and they were recorded on an EKG and Blood pressure monitor. I was diagnosed with autonomic nervous system disorder. I had to increase my salt intake change my diet but I still get these weird adrenaline surges that last for hours or days and if I do physical exertion I do not notice it as much but if I am sitting at work or home it drives me nuts. If I get anxious it leads to a syncope event and I pass out. I am 53 and wonder if this is how it will be from now on. I may go out on a disability I miss so much work. I may have a good week and then it hits hard and I feel terrible for days or weeks. Good luck and keep fighting for answers. Seems like autoimmune because of the flares and how they come and go. Debbie

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