Weird migraine symptoms ???

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Does anyone here get burning tingling and throbbing sinuses and roof of mouth and sensitive teeth with there migraines? I also have right sided facial jaw and behind ear pain like a burning and tingling...I was told I had migraines and trigeminal neudalgia...but after seeing neuros headache specialist plus a facial pain expert they are saying my symptoms are a form of migraine and tmd?? I cannot believe migraine would cause these weird symptoms?? My sinuses are always congested and get a clear runny discharge that drives me mad. I've had tons of scans of brain neck sinuses all clear..I'm seriously fed up. I went back to my doctor who is guna refer me back to ent..this time o want swabs done and further investigation also my doctor took bloods and my inflammatory markers were up so he is referring me to rheumatology. Anyone else have symptom like me? I'd love to hear from you

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14 Replies

  • Posted

    Hi yes I have this too and your inflammatory markers suggest auto immune disease. I was diagnosed 12 years ago and your weird migraine symptoms are just like mine x
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  • Posted

    Google vasculitis. That us what I have. Comes in different forms. Some people have loads of symptoms others not so many. Also have a look at my profile and it tells you other symptoms I have. They may or may not apply to you but I def get the migraine and sinus issue. Xx
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  • Posted

    I've added symptoms, but they are similar to Menieres. Stuffy ears, pain in one ear, some vertigo, occasional tinnitus. Been through all the tests, inconclusive. From what in continue to read in these forums it sounds like migraines are an umbrella name under which many other conditions may be happening. The trial is finding the right dr before you break the bank. And finding the right medicine before the side effects are worse than the migraines. Good luck, but yes, there are other weird symptoms that can go with migraines or vice versa.

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  • Posted

    An integrative dr can help guide you to a way of eating that reduces inflammation. Start by going off all grains, that includes the infamous gluten free diet, but much more.
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    • Posted

      I don't personally find food an issue. Since my disease is under control now and it does not matter what I eat or drink. Once inflammation is under control life returns to blessed normality. I have been migraine free now for 3 years. X

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  • Posted

    I experience a buring sensation in my jaw joints as a precursor to my migraines. I also have idiopathic intracranial hypertension. I experience two different headaches 1) pain in the back of my head radiating around the sides and up the back, with various degrees of intensity. It feels like intense pressure, as if someone is grinding their boot into the back of my head This headache is constant and I've experienced it since 2009. I believe this is related to the IIH and pressure, some days are worse than others. 2) The second type of headache is sharp, stabbing, and throbbing. It normally includes back of head as normal + tempels and eyes. This is when I feel the jaw burning first, often run a low grade fever, see blurred lines or zigzags, and experience dizziness/vertigo, nausea, and on occasion difficulty forming sentences. I believe this to be the migraine aspect, and can lessen the symptoms with triptans, Migranal a DHE nasal spray works the best, in conjunction with 2 fiorcet, valium for vertigo if needed and zofran or reglan for nausea. I prefer reglan cause it knocks me out so I can not feel the pain, but doesn't cause the hangover feeling phenergan does. I have used other triptans and felt like I had a hangover the entire day after, imitrex injections especially.

    My neuro seems to accept that the jaw sensation and fever are an aura for me. It is crazy what people experience. The inability to form sentences or speak is most alarming to me. My husband was really freaked out about it, because it mimics having a stroke.

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    • Posted

      How often are you finding you have these symptoms and therefore go through that medicine regime. I feel like I'm treating symptoms daily, several of which you mentioned.

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    • Posted

      Betsy,

      I have been on medical leave from work over the past six months while we tried various treatments and stopping some daily medications and starting some new ones in addition to doseage adjustments. As part of my treatment I have been instructed to avoid the abortive therapies as I described in my previous post as often as I can. This leaves me in pain a lot, but if I can break the worst of it I can manage. To avoid rebound from the fiorcet, I can take no more than 8 pills per week, and I have to take 2 at a time to get any relief. I also limit the migranal nasal spray because I fear I will become resistant to it the way I have with maxalt pills & melts, zomig pills & nasal spray, Imitrex pills & injection. I usually get to a point where I can barely form a sentence or experience one eye involuntarily closing when the pain feels like I'm getting a lobotomy. I try to keep my abortive regime to 8-10 times a month. This also rules out medication overuse headache. I don't take any over the counter medications for headache ever, to avoid the MOH/rebound concerns. I often find myself treating the other symptoms more frequently such as nausea, vomiting, dizziness, vertigo. I can do this because I am at home right now, but I need to go back to work. I guess we'll see if that works out.

      Jenn

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    • Posted

      I keep trying to reduce the meds, particularly Fioricet and Imitrex, but I have a hard time resisting when the pain becomes so severe, I feel hopeless. I am not working, but I feel so unproductive and like a burden to my husband. We are both retired and had so many plans, and I feel I keep letting him down. Although he assures me I'm not. Thanks for ans.my question.

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    • Posted

      Betsy,

      I know how you feel on how tempting it is to medicate. I don't always get complete relief so sometimes it's worth it other times not, I guess I've just accepted feeling like h#ll all the time. Icing can help, but then you have to be in bed. I have found the best ever ice packs called "comfort gel" made by accurate manufacturing available on amazon. My husband got one from the hospital after knee surgery and it stays cold for several hours. I feel you on being unproductive! I haven't been driving due to unpredictable dizziness amd vertigo, so my husband carts me to my doctors appointments, which are at least 2-3 a month and on occasion to the ER. I struggle to do house work and make dinner... You are not the only one. My husband seems to try to understand which really helps, though I still feel guilty. How is your husband with your condition? I mentioned in another post that an ice cream headache gives me relief temporarily, therefore plesant. If you give it a try and find the same you can use that to help others understand the severity of your pain. I've got am upcoming appointment with a neuropsychologist about my depression and anxiety. My neurologist recommemded this doctor because he has an understanding of neurological conditions and medications, so hopefully he can recommend something to help. Depressiom comes with the territory of being in chronic pain, at least at one point or another.

      Jenn

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  • Posted

    Chantell,

    I forgot to mention in my previous reaponse that I have discovered an "ice cream headache" gives me momentary relief. Though people find it alarming that I almost enjoy it, while everyone else is momentarily is extreme pain... I guess it gives normal people a reference point for the type of pain I feel if I find it pleasant. If nausea allows holding ice chips against your soft palate may give you temporary relief while you wait for meds to kick in.

    Jenn

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  • Posted

    Do you take opioids? Repeated use causes sinus problems. Also, take it from someone who's been ther and had surgery, you have TMJ. See a doctor who specializes in Dental - oral and maxillofacial surgery. You will be amazed. It didn't solve my migraines but took care of TMJ which are unbearable together. Hope that helps. God bless

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  • Posted

    I have the sensitive teeth, uncomfortable pain, I was told it's typical facial pain with Migraines, they gave me Pregblin,not much difference, I know when my migraine will start, when my teeth hurt ..

     

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