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Well this is a new one for me Polymyalgia rheumatica

Posted , 4 users are following.

gill88268
gill88268

Just been diagnosed with this and put on prednisone 6 tablets per day treatment.

Would really appreciate anyone with the same condition to chat to

thanks

0 likes, 2 replies

2 Replies

  • markandevie
    markandevie gill88268

    Posted

    I too have been diagnosed and new to me as well. the symptoms are debilitating and prednisone works only after a few hours for me but I still can feel uncomfortable especially in shoulders. morning s are awful at times with groin, hips even hands and back of knees. I am 57. fit as I used to run daily and not overweight. I hope you are managing and sorry you have this awful condition. keep strong, its not easy I know as I crumble at times as it brings me to tears. Good to talk

  • mary91830
    mary91830 gill88268

    Posted

    Hi gill88268.

    I was diagnosed 4 weeks ago.

    Good to finally have a name for an issue that has been troubling me since January 2022.

    First doctor I saw, just assumed I was being a hypochondriac and he said the soreness, stiffness and pain was....... "all in my head".

    Thankfully I am now seeing a doctor who knows what she is doing.

    She advised me the main treatment was high doses of prednisone every day for several years, and I have rejected that treatment (for now at least - I told her it was the last resort for me).

    This is due to a past health condition 20 years ago, where I had to take high doses of prednisone every day (14 tablets) and I had so many side effects that the "cure" turned out to be worse than the condition almost.

    Anyway the day after she diagnosed, I quit sugar and have started an anti-inflammatory diet, plus taking more natural medication, and it has been life changing in terms of less pain, less stiffness and less soreness.

    Yesterday morning and this morning, I walked 10,000 steps and went for a swim. A month ago this would have been impossible.

    Hope you start to feel better soon.

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