Were you a bili baby?

Posted , 6 users are following.

Hey guys,

I am curious if there is a connection between being born with jaundice as an in infant, and expressing the Gilberts gene later in life. I was not born with jaundice, but my brother was. Were any of you born with jaundide?

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  • Posted

    Hi Emily & Billy,

    My son is struggling with Gilbert's Syndrome. He is 18 and started to have debilitating symptoms after contracting Glandular fever. He did have jaundice when he was born and I have often wondered if there was a link. His last Bilirubin test came back at 70........his jaundice has been fairly constant now for over 18 months.....but unfortunately this is probably the easiest symptom he has to live with......he has nausea constantly and as a result is underweight and even though he is very intelligent is finding it very difficult to study......his life it seems is on hold and after 2 years of seeing any and every medical specialist I now feel like I can only sit and watch him struggle.....there seems to be no answers to this problem. So sorry for the depressing post.

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    • Posted

      For some people, including myself, a high bilirubin level can be caused by eating spices and herbs.

      Spices, herbs and alcohol are considered by the body as toxins and they pass to the liver where they are broken down into chemicals that the body can absorb and use, or eliminate.

      I thus have had great success in lowering my Bilirubin level from over 100 down to 27 by not eating ANY spices or herbs.  Some people complain that such a diet is too boring, but I soon got used to it.

       Don’t forget some things:-

      Bilirubin is destroyed by sunshine and some people obtain benefit from being out in the sun for as much as possible.  ( It is also good for exercise and mental wellbeing, both of which are a plus )

      A moderately high bilirubin level has good effects on the heart and arteries.

      Wikipedia has useful information on both Bilirubin and Gilberts disease


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    • Posted

      Thank you for being so understanding of your son, I am his age and I have pretty much got all of the same symptoms as him but is having to deal with Gilbert syndrome with only the help of my doctor because no one understands just how difficult it actually is

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    • Posted

      Annette sorry if this sounds bad but thank you for your post. I too am a mother of a son who has just been told he has Gilberts Syndrome. Hes just turned 16 years old. Isn't it heart breaking seeing how quick they become unwell! Im still researching it all trying and hoping for more answer's to all my questions.

      I hope your son is doing better and here is a big supportive squeezy hug from me to you .x.x

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