What an earth is an IBD nurse led clinic??

Posted , 7 users are following.

Hi everyone.

Received a letter in the post today, as well as having a dietician booked (weight loss problems) I have had another letter from my local hospital mentioning an IBD nurse.eek What I want to know is what an earth is an IBD nurse and what do they do??

Second what happens in a nurse led clinic (it's my first one) and I haven't a clue what to expect. 

Does anyone else go to these and if you do how often do you go?


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6 Replies

  • Posted

    I have no idea they ate maybe a Specialist of some sort which is great

    Let me know how you get on.i am new to all this just started mezaline 1g

    -UC diagnosed jan 15

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  • Posted

    Hi I have been seeing a ibd nurse for several years,they are specialists in there field and have a lot of knowledge about UC,good luck, regards Ann 
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  • Posted

    Hi metaxa IBD is shorten form of inflammatory bowel disease.

    some people will say I've got IBD or Crohns or ulcerative colitis or colitis to be more specific. An IBD specialist nurse led clinic is where you will be asked to attend to see how you are. You'll may have your weight taken before you see the nurse. The nurse will then have a meeting with you as to how you are feeling & how your IBD is. They may ask you to have a blood test before this appointment or ask you to have one then or after. Your meds & their effectiveness will be checked. It's also a time when you can have a good chat if you're feeling down,confused or worried about anything yo do with your IBD. If they feel you need to see a doctor sometimes one can be brought into the room or they'll seek advise. If yiuve been newly diagnised then you'll probabky have regular appointments at these clinics, appointments with doctors/ consultants & appointments for camera in treatment centre. Please Don't worry about any of these. It might be a lot initially but it's to get you well! 

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  • Posted

    I could do with going to one of them as I have lost 2 stone.It will be irritable bowel  They will talk about diet I think.


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  • Posted

    Hello bustergut

    Thank you so much for the reply and info. I had visions of some kind of session with a load of people there you know like group therapy or something!! redface

    I have only had a diagnosis since November 14 so it's handy to have someone who specialises in this, feel a bit more reassured now.

    I will certainly let you know millie I go on 26th this month. I'm on Mesalazine too.

    ann thanks also for putting my mind at rest, I hope it is all going well for you at clinic with your IBD nurse.

    barbara I don't understand this [confused]  I thought they were widely available, have they got an IBD nurse near you? What has the GP/consultant said? I had lost about the same weight at one point, have you got any calshots or maxijul? These have helped to build my weight up and it is better but is still work in progress.

    Thanks again let you all know how it goes.

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  • Posted

    Hi everyone.

    Had first clinic yesterday and thought I would update you.

    Since last Thursday it's all gone to pot. Another wretched flare up. Feel absolutely disgusting, off food, weight down etc.cry. Pity they don't have a green puking smiley.

    Thank god for IBD nurses!! Mine brilliant, Mesalazine increased and got lots of help.

    Back to see her in 1 month and more tests, poop etc.rolleyes

    Hope you are all doing ok, back to bed for me until better.


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