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I hope everyone is doing well - my developing story below and it scares me. I'm a 24 yr old female, have hypochondriac but never experienced something like this. Scared of a misdiagnosis (like ALS or MS)
-Muscle started twitching around** July 2018**(started at one spot and then all over)
-June 2019 Did blood work - report came back fine with the exception of Vitamin D deficiency (My Vitamin D level was around level of 13 NG. my primary physician said this is very normal because in Cali SF, we don't get sun much) Not sure if muscle twitch was related but that was my primary concern plus daytime fatigue/getting drained by 9pm**
-Prescribed 1000 IU to take daily, did for one month straight and did not see improvements so now I occasionally take it whenever I remember
-4 months ago - November 2019 started experiencing diffused muscle pain (no spasms) but my joints/nerves/muscles ached one day. thought it was a flu but the symptoms never subsided. pain lingers, one day could be horrible and next day pain lessens, feels like repeat.
-Went to neurologist December 2019 came back with clean emg/ct scan but was still worried sick.
-Experience stiffness of wrist and fingers/heavy fingers from time to time. I have since taken vitamin D daily and planning on upping the IU.
I feel so miserable and depressed, the neurologist told me with a clean emg and ct scan theres nothing much to worry about and referred me to physical therapy. I've been having alot of anxiety, (e.g. crying), writing a will, etc. I dont know what to do anymore.
Ive read many stories that after 6 months of twitching, if theres clean emg then I am clear but I feel like my symptoms are escalating.
Has anyone in this forum experienced this? I am hoping Vitamin D is the culprit but as time goes and symptoms worsens, Im just afraid of misdiagnosis of something that is even more serious
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