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What are your new areas of pain/stiffness you've experienced as you reduce?

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danielle_65358
danielle_65358

A reply by Dan38665 on another post prompted me to ask this question

When tapering/ reducing your current dose of Prednisone, if you experience pain and stiffness, is it in the same areas as pre diagnosis? Is the pain symmetrical? What new areas of inflammation have you experienced as you reduce that are controlled by an increase in Prednisone?

For me, bursitis like pain in my right shoulder and left knee are new. Pre diagnosis, I had symmetrical pain in both shoulders radiating down my upper arms but, it did not feel like bursitis.

As for my left knee, this old injury ( that I believe triggered my journey with PMR) had a different pain upon reduction then prior to. It was visibly inflamed and stiff and painful

Both of these issues took about a month to subside. But were absolutely relieved after an increase in Pred.

My biggest complaint now that I'm steady on 11mg (since starting on 20mg In Feb)

is back of leg pain. It's more of a muscle ache really. Both legs from buttocks to thighs. Every morning and every evening.

For now, the rest of my pre diagnosis areas or shoulders, neck, groin, hips are all in check.

Let's compare!

0 likes, 27 replies

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  • nick67069
    nick67069 danielle_65358

    Posted

    Oregonjohn-UK and EileenH ,

    Thank you for concern and suggestions.  I was too focused on describing symptoms that I did not mention that after first 2 weeks of transition those symptoms are pretty much gone.  I usually wait antoher 10 days after symptoms are gone, before trying next reduction.  I am aware that the " lowest" dose for my current condition is very close and I am very careful with reduction and will back out as soon as it does not feel under control.  For this reduction I have gone from 3-1, 2-1  DSNS    to 4-1, 3-1, etc and in essence almost doubled the transition time from 16 to 26 days.

    • EileenH
      EileenH nick67069

      Posted

      I'd assumed that when I first read your post so didn't reply immediately. I started the DSNS schedule at 1 day new, 6 days old BECAUSE of that problem - it took me even longer to reduce, though in fairness I can only reduce 1mg at a time as I cannot cut my tablets. 

       

    • Oregonjohn-UK
      Oregonjohn-UK nick67069

      Posted

      Sorry Nick, - glad that's cleared up.  It's an ongoing 'problem' trying to reach that magic zero, so many try to rush things and has already been said it controlling the symptoms whilst the underlining problem makes it's own mind up to go into remission.
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