What can this be?
Posted , 4 users are following.
Hi All,
So I've been ill for a couple of years now.
Brain fog - difficult to wake up
Stiff joints
Heavy arms and legs
Tiredness
Bloodwork ok except for gamma GT which sits around 125-185.
Most recently I have uncontrolable itching!!! Mostly arms but also on my abdomen which comes and goes and looks like a red rash.
Any ideas as to what I might be up against?
Thanks a million!!
1 like, 22 replies
john03722
Posted
RHGB john03722
Posted
Brain fog is down to lack of thiamine, which is washed out of your body by alcohol and makes it difficult for your body to produce more, especially if you are not eating properly.
Stiiff joints, arms and legs, central nervous system.
Tiredness/fatigue, again an indication that the liver is struggling and also probably bad eating habits.
Itching, peripheral nervous system. I should imagine this happens when you stop/are not drinking.
I could of course be wrong, but at a guess, I would say that is why.
Not medically qualified, just someone who has had his own share of alcohol problems and ended up in hospital for it.
john03722 RHGB
Posted
Anything else I can do to help myself? I started sport which seems to help although my legs are SO heavy.
Thanks!!
RHGB john03722
Posted
If the itching is alcohol (it could always be something unrelated) usually only a couple of weeks.
If you had another GGT in three months it would most likely be in the normal zone.
In the mean time, you may want to get a month's worth of thiamine for the brain fog. A month's worth of vitamina B complex/compound strong and folic acid for your body.
Do not go to the supermarket and buy some multivitamins, they will not help. It must be thiamine, folic acid and vitamin B compound strong or complex. H&B sell them all, even if the staff member doesn't actually know it or a chemist will sell them.
john03722 RHGB
Posted
john03722 RHGB
Posted
What kind of doses would you suggest?
thiamine
vitamina B complex/compound strong
folic acid for your body.
Thanks in advance
RHGB john03722
Posted
Thiamine usually comes in 100mg tablets and one a day will be enough.
Folic acid comes in 400ug tablets and one a day is enough.
Both of those you can probably just get off the supermarket shelf.
vitamina B complex/compound strong one a day, they don't seem to give a weight, might be because it is made up of several different B vitamins. It contains things like a small amount of thiamine, but nowhere near the needed amount, so please still buy that separately. The is no reason that this should be behind the counter, but you may have to ask for it.
My post will get moderated if I say their name because it is advertising, but the large chemist beginning with B also sells all of these and would definitely have them in stock. Not that you should be asked, but if you did have to ask for it from behind the counter and they helpfully asked what it was for, just be honest and say you had a drink binge over Christmas that ran into January/Feb and you're suffering a bit of fatigue.
john03722 RHGB
Posted
OK great, thanks for the advise.
The itching is a bit of a nightmare, doesn't stop. I also have a very irritated (swollen feeling) tongue.
No alcohol, eating well and drinking lots of herbal tea and water.
RHGB john03722
Posted
john03722 RHGB
Posted
charlie.alex john03722
Posted
This has been a really interesting thread as I have the same symptoms, at the moment I just take two milk thistle tablets a day and two cloves of garlic. I only eat fruit for breakfast and when I wake up I drink 550ml of water and nothing else for 50 minutes, every other day I mix a squeezed lemon into the water. It definately helps but the symptoms still remain enough for them to be a daily difficulty. I will be looking into what's been suggested as it seems really promising. Thanks guys.
john03722 RHGB
Posted
I'm starting to think this is liver cirrhosis although GGT was the only elevation. Could it be or am I going mad?
RHGB john03722
Posted
I've no idea. I have no information other than your GGT measured high on your last test. Perhaps your drinking history may help.
john03722 RHGB
Posted
Mid 40's almost, drank quite a bit of beer over the last 20 years .... never an extreme amount but maybe the frequency is a problem?
Stil litching, heavy legs and mild abdomina pain. Extremelly tired especially before getting up - I struggle to get out of bed.
eric89660 john03722
Posted
john03722 eric89660
Posted
Thanks Eric, wow! I have had a lot of blood transfusions too. I'll read up further on this. Thanks a million!
RHGB john03722
Posted
I would have thought your transferrin level/saturation would have been part of the test. If not you can be tested for this, to see if your iron levels are high. But it doesn't neccesarily mean haemochromatosis because mine were through the roof when I came out of hospital, but settled down over the nexr year.
What were the blood transfusions for? Were they complete blood or blood products such as plasma?
There is a separate forum for haemochromatosis here.
RHGB john03722
Posted
The only way to be 100% sure about the state of your liver is an abdominal ultrasound.
john03722 RHGB
Posted
Thanks! Blood transfusions were 10 years ago, I very suddenly lost a huge amount of blood, after testing for 3 days they found I had Merkels Diverticulum.
I'll check the haemochromatosis forum too.
Thanks all! I really appreciate your help and advice.
john03722 RHGB
Posted
RHGB john03722
Posted
Well, if you're really only a beer drinker (not wines & spirits and not cans of Special Brew) and had say two to three pints a day, it is unlikely to have caused any major problems.
Although I will say, that suffering low energy levels/fatigue and needing a lot of sleep is usually connected to the liver and associated organs, I think you have become tunnel visioned about the only cause being alcohol.
I think you need to step back and say, there appears to be a problem, what *could* be causing it. I would talk to your GP and ask for a full set of bloods to be done. They never do all of them, but last time I had mine done, there was something like 23 different tests.
john03722 RHGB
Posted
I'll ask for some extensive testing.
Onother strange thing is if I drive for a while, say 20 min. When I get out of teh car my legs are SO stiff/heavy, I can't walk properly for 5 mins...