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what can this be? Pins and needle, prickling, burning sensations..... help

Posted , 9 users are following.

nicole00
nicole00

Hello my name is nicole and i have been battling this unknown condition since October.. i am very frustrated and starting to giving up.

back in october i have developed numbness, prickling, ant-like crawling sensations.. i have been in a lot of pain such as; muscle spasm, burning sensations on skin. these symptoms vary from time to time.. sometimes they are better or worst. it feels like my symptoms always change through out the months that i have been feeling this way. i went to my family doctor to do blood work, i have done pretty much all the basic blood work and everything was NORMAL, i went to a neuro i did an MRI, EMG/ NCT and it seemed NORMAL. my symptoms were still the same. no change. maybe a bit better. i also did blood work that my neuro gave me and it came back fine. he said possibly small fiber neuropathy which cannot be detected with emg or nct. 

nothing was changing so we decided to re-do all the tests and it came back NORMAL second time. 

my symptoms recently became worst, i feel the pins and needle way more than before especailly both of my right and left hands, everytime i move my hands or position it i feel stabs just everywhere and burning like feeling. the prickling, ant-like feeling are always there. 

i am not sure what else can this be, is this related to my muscles, nerves, bones? i am not sure what is the problem any why it cant be found.

neuro suggested gabapentin but i am not sure how i feel about starting pills. if i have no choice than i will. 

any suggestions, recommendations will be much appreciated 

0 likes, 23 replies

23 Replies

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  • Dotty34
    Dotty34 nicole00

    Posted

    IT might have been  me writing the post.I have exactly the same symptoms.

    I have peripheral neuropathy .It started 4 Years ago.I have tried most medication but there is no cure.Night time is worse .I am doing walkabout several times to get relief from spasms and cramps.At the moment  I am taking Amiltryptline  and

    cocodomel .It gives some relief.Gabapentin gave me heartburn.

    It is very debilitating and not one day without pain.You just have to try what is offered 

    and see if anything works for you.It affects people differently. I am 83 years old and could do without this. But try to positive.

     

    • nicole00
      nicole00 Dotty34

      Posted

      sad

      I might try gabapentin start with a very small dose and see how it makes me feel. I also going to try acupnature and relaxation. I am 25 so I am very young to get this time of condition and I have been healthy most of my life so it’s weird but I think something changed in my body maybe stress over time that gave me this. I will try everything to make me feel better. And staying positive I still want to live a healthy long life. I hope you get better!! 

    • dawn68509
      dawn68509 nicole00

      Posted

      Hi Nicole I always think mine has come on me through stress over the years I'm 42 and I don't have a second without it for 18 months I've tried alsorts nothing works

    • nicole00
      nicole00 dawn68509

      Posted

      What did you try ? And what are the doctors thinking it could be?
    • dawn68509
      dawn68509 nicole00

      Posted

      I've tried pregabalin cymbalta amitriptyline ,b12 in high doses along with many other supplements I've researched ,neurologists don't have any ideas regarding such acute onset but researching myself I've seen small fibre neoropathy that has come on acute the same as guillien barre syndrome which effects long nerves I'm waiting to be seen by a specialist clinic for nervous system disorders this has driven me insane

  • philippina78653
    philippina78653 nicole00

    Posted

    Hi Nicole00

    I have the same Sensory neuropathy It is damage to the small nerves in the body.

    I have had all the same tests done and the nerve conduction study shows that I have sensory and could be poly sensory but the neurologist said it was sensory.

    I have been ill in bed with on going  burning feet and such bad pains in my feet I had to stay off my feet away from the cold. But in  both cold and warm weather my feet flare up.

    it is a loosing battle.

    If you don't take the tablets your doc prescribed , you will never fin d a solution.

    my meds don't  always work but when it does I am thankful.

    I have gained weight but I have been eating healthy and my weight is  coming off.

    I feel your pain.

    Let me know how you have been doing.

    Kind Regards

    Philippina78653

     

    • nicole00
      nicole00 philippina78653

      Posted

      Thanks for your input. What kind of medicine they prescribed you ? I’m waiting for a referral to a different neurologist for now. I was given gabapentin but didn’t start taking it yet. My burning sensations in my hands recently and lots of pins and needle sensations when I move them it’s been so hard to sleep and do stuff ! 
  • philippina78653
    philippina78653 nicole00

    Posted

    Hi Nicol00

    the medication you have been prescribed is what I am taking.

    hope that helps.

    let me know

    Philippina78653

     

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