What could this be? migraine?

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Been having a dull headache for 3 weeks now, had a weird sensation 2 days ago my face, arm and leg on my left side all felt weak? I still had feeling and control but they felt weak, its hard to describe but its like my face was just feeling droopy on the left but no physical change

Went to a+e after the first episode had CT scan and reflex tests done, everything ok

was pretty fine after that, got home went to bed.. Woke up a few hours later and was ok, few more hours sensation came back, has been the same all day and today, sometimes it'll feel less weak and other times it'll feel really strange along with my head having a weird ache and a pain in my left eye like an ache

I cant explain it, feels almost like a dead arm, leg and face but not completely dead?

Doctor at A+e said everything was clear and he thinks its possibly just a migraine 

I do seem to suffer from depression and Anxeity.. could be related?

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  • Posted

    Hi Sam,

    Interesting the dr in emergency said its "just" a migraine!  I bet he doesnt suffer with them, else he would NEVER say this.  I was diagnosed with Hemiplegic Migraine, which symptoms are similar to what you have described and this followed a lot of tests by a specialist headache Neurologist.

    I wouldnt just leave it at that, but get your GP to refer you to the best Neuro he can find, to run tests.  You need at least a detailed MRI scan to rule out anything sinister a CT scan is not detailed enough.

    Yes, depression does have a bearing on these type of headaches so my Neuro told me, so I was able to eliminate some things in my life to help this, plus I was offered Botox which together mean I havent had an attack since January.

    Let us know how you get on, but this is my advice anyway.

    Good luck and best wishes

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    • Posted

      Hi personal20 does botox help with the hemiplegic symptoms too or just the migraine pain. ?
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    • Posted

      Hi babs,

      In my case it has helped with everything to do with HM, but I discovered and the drs confirmed that de stressing your life helps too.

      Are you considering Botox babs?

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    • Posted

      I have Chronic Migraine with Aura and no medication at present. Was declined for botox and seemingly on top of the list for some new treatment suitable for cardiac patients. Not sure how long I will have to wait though 😢

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    • Posted

      Its not available yet on NHS where I live and because I already had nerve block previously with no results I think thats why.
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    • Posted

      I had nerve blocks too then went on to Botox.  You are right that you have to wait a while after having nerve blocks before they allow Botox.  I go to London for my Botox, which is not my area at all.  This could be something for you to think about if you are not too far from London
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    • Posted

      I am in Scotland. So quite a journey. I have heard good and bad about botox. It works for some and not for others. Meanwhile I wait painfully. Sam however should get referred to a Neuroligist and get diagnosed. He/she wouldn't be offered botox straight away I don't think, they tend to try other treatments first.

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    • Posted

      You are right babs, Sam should get refered to a Neuro, not just fobbed off saying oh its just migraines!  Yes it would be quite a journey to London to have Botox, but for me they have been great and well worth the travel
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    • Posted

      I acquired Long Qt Syndrome through migraine meds that put a halt to treatment and more or less has made me a prisoner as I cant get treatment for other conditions either. Not sure I could make the journey to London without getting a migraine enroute and ending up unable to function for a few days. Glad it has worked for you though ☺
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    • Posted

      I think Botox could be good for you though Babs as its not like taking meds.  How on earth do you cope with no meds to help you, it must be so bad,  I am lucky that I can take something to take pain away or go get Botox for it.  I get 2 sorts of headache.  Cluster and HM, and the problem is what helps the cluster, doesnt help the HM, so if I take a lot of meds for cluster, then I risk getting HM
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    • Posted

      I don't cope well and have anxiety and depression and high bp all which can't be treated. I had to give up work and in constant battle fighting the system to get benefit.

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    • Posted

      sorry to hear all that Babs, I hope you get somewhere with it all soon.

      It sounds a nightmare!  Just come on here and chat when you get down I will answer as soon as I can.

      Have to go out now,

      Take care

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  • Posted

    I thinknit does sound like hemiplegic migraine but sometimes that can have an underlying cause. In my case it was caused by an auto immune disorder. It is worth ruling this out if you have any other health issues going on like gi issues or any joint pain dry eyes or mouth or light sensitivity. I would ask for a referral to a rheumatologist.
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    • Posted

      Yes this is where you need to be seeing a rheumatologist or an immunologist. I had all of this too and was going from one specialist to another. Diagnosed with migraine, diagnosed with ibs. It was none of those things. Or at least they were all seemingly unconnected issues but were all connected and caused by auto immune disease.

      I was finally diagnosed 12 or 13 years ago afyer a referral firstly to a rheumatologist who recognised I had an underlying inflammatory condition. Then an immunologist who diagnosed me after a year of monitoring. Look up headache in Lupus and see if that looks like your symptoms. There are many auto immune disorders but they have a similar profile.

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    • Posted

      Yes Babs it has been one of the main features but for the past 3 years all of my symptoms....migraine ibs joint pain other issues....have been well controlled by taking interferon. I recently had to stop taking it and I am waiting to see what happens. I currently have some ibs issues returning and a bit of joint pain. The migraine has so far stayed away. I am crossing everything it doesn't come back as it is hell on earth. Have you ever had a full diagnosis of your symptoms?

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    • Posted

      Not all together. I think I replied to you in other posts about this but cant remember it all. I don't have the symptoms you mentioned to Sam above. Though always been light sensitive which is getting worse the last few weeks was looking up photosensitive stuff. Difficult just now though as I have labyrinthitis so dizzy all the time.

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    • Posted

      Yes this is difficult. I remember you from other posts. I don't know if you could have anything auto immune going on. But I would say there are people in my support group who have same illness as me and only have eye problems for example. Some only have joint issues. Some only have neuro issues. Different for us all as it is caused by inflammation and you get problems where it is present.

      It is just always worth ruling things out. Has your bloodwork shown anything of interest? I only ever have slightly raised esr and crp. Other markers like ana not present and anothet specific genetic test I can't remember the name of right now also absent.

      This is why for a lot of us diagnosis is difficult. I also suffer symptoms of labyrynthitis when disease is active. And heart palpitations too which is very common. No one ever explains why lol. Often we talk about this in the support group. We rarely get explanations for anything!!

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    • Posted

      By the way Babs see you are in Scotland. I am Scottish but living in London. I have friends through helpgroup who ate in Scotland. One sufferer is great because she is a qualified nurse. One is very active in Vasculitis UK and very knowledgeable. I could put ypu on touch with one of them perhaps? A bit of support and help on your own patch might be good for you. Even if you don't have auto immune disease...both these women would be good advocates, good support gor you. I am not sure if we are allowed to give any contact details on this site.

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    • Posted

      Yes you are right they don't explain anything and try and fob you off. I think I said before I get get diagnoses but no medication so dont bother going to GP most of the time. I do get a lot of chest pain and palpitations and supposed to go straight to A+E but the lights in hosp are brutal and give me migraine so the chest pain dies down and I end up with three day migraine and no meds so just stay away.

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    • Posted

      Sometimes Babs a visit to a + e can be very useful even if it makes you suffer. When your symptoms are active it is good to be seen and sometimes you get someone who gives an insight into your situation.
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    • Posted

      I don't seem to get that experience. I was in over Xmas last year with a heart attack. I spent four days in the dark vomiting and head pounding. My heart is seemingly in good condition they don't know what causes it to spasm and cause an attack so just leave it till the next time.

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    • Posted

      Awful! But again...auto immune disease can affect the heart. I had a heart murmur 2 years ago when particularly unwell. It just disappeared again quickly.
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