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finaly after 3 years of unexplained progressive symptoms and lost blood test i got a positive result for lymes co-infection ( anaplasma) although basic lymes test was negative. my GP sent a very good referal letter with all my symptoms plus a supporting letter from lymes disease action who i had emailed many times and knew the history and symptoms which they included. the 1st letter from manchester infectious diseases came back saying i did not have lymes and should be seen by a cronic fatigue clinic! then the second letter has just come back from sheffield saying they strongly advice my GP refers me to ither manchester,blackpool or liverpool so i dont have to travel so far to sheffield my GP has read this as there is no point in taking this any further as manchester have already dismissed it. what on earth should i do now i just need to know have i got lymes or not and want to at least been seen before its ruled out but think my doctor has had enough of refering me. any ideas please
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sarah47655 vicky89033
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vicky89033 sarah47655
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sarah47655 vicky89033
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marie62224 vicky89033
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You do what what you can to heal yourself. until someone with a bit of open mindedness gives you the help you need.
You have been lucky in your GP so far.
If you message me I can give you the name of someone who may be able to help you.
Boost your immune system using all the things advised on the many Lyme etc forums.
I bought a book called healing Lyme.
Homeopathy has healed late stage or chronic Lyme as some call it according to a lady in US. I wish I knew a UK homeopath who had experience of healing Lyme.
Even if you cannot get to places there are specialists who will give you advice by phone.
Why won't the goverment care ?
How can so many people be suffering in this way and so few in officialdom will admit that this real and isn't going to go away.
vicky89033 marie62224
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dian55663 vicky89033
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craig60111 vicky89033
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Can you tell me what symtoms you have had especially the neurological ones
Thanks
vicky89033 craig60111
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dian55663 vicky89033
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vicky89033 dian55663
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marie62224 vicky89033
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Cure seems to depend on place and income. If you live in US and in the right State and presumably have mediacl insurance or sufficient money then you have more chance of a cure than being poor, living in UK where gp's are either ignorant, uncaring or simply not permitted the resources to treat Lyme and co infections.
Even the cost of all the things needed daily to manage this thing are beyond many folks' means.
You then have to adapt to the situation and just buy the minimum you can manage with.
dian55663 marie62224
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marie62224 dian55663
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You wouldn't believe how hard it is here.
Lyme is recognised in US.
In uk you are either" depressed, Have some depression pills" or" imagining things" or its" dermatitis."( this by private dermatologists).
If you try private LDD's(very few and far between) then the price of their treatment would make you depressed even if you weren't. before.
Lyme? "No we don't have any cases of Lyme here.". They say.
Well let a good few GP's and their families get it is all I can hope and then they can see for themselves and maybe get something done.
Dogs get better treatment for it than do humans but then vets fees are huge.
There is little researchdone here because they say" why copy what the USA has already done." So they do nothing. Meantime all these people are struggling and desperate and have to rely on support from the internet in order to cope.
Of course there are exceptions. Vicky has had a good GP who is trying to help her but his hands are tied if further up the line no one wants to know..
sarah47655 marie62224
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As far as I'm aware, we don't have any LDD's in the UK and if they're are any they're private and don't advertise themselves.
From what research I've done the best in the world are in either Germany or the US Regards treatment I think the best results for chronic lymes are in Germany.
We so need to catch up as regards diagnosing Lymes and treatment in the UK
dian55663 sarah47655
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sarah47655 dian55663
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That is one thing I will never do is give up
. I have a great GP whos very supportive and appreciative of my research as it helps both of us. I am determined to get my life back for my family and to help others in the same situation. I was a long distance runner before I fell ill and one day my aim is to run again and raise money for Lymes and POTs UK charities
.
I wish you well too.
dian55663 sarah47655
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Great to hear of your optimism, you are a true survivor.
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