What do I do with all the things that come with this?!

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I first had glandular fever back in 2010 when i was 15, and it lasted for 3 years. I had all the usual body aches, tired to the point i was sleeping 17 hours a day and when i was awake it was never for more than an hour at a time. Other things like aneamia and losing weight. I got tested again a month ago and it came back positive. I knew i had it back because the oral thrush came back and my aneamia has too. But the one thing im struggling with is hair loss! Cause im not eating and my blood levels are low my hair is falling out! It happened last time and its only just grown back after 4 years, but i dont wanna do that again? Has anyone got any ideas on what i can do? Im already taking vitamin tablets etc.. also got a ultrasound scan tomorrow on my spleen cause its been causing so much pain and supposedly quite enlarged. Id love any help cause the doctors told me once ive had it ill never get it again sad 

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  • Posted

    3 years ? Jeez how discouraging((((

    Sorry you're dealing with it again.

    During those initial 3 years did you have puffy and drooping area above eyes ?

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    • Posted

      In all honestly i cant remember if i had any problems with my eyes. This time i did develop pain behind my right eye and a swelling to the face on one side which im under the hospital for at the moment. The first time i had it i was asleep for most of it and trying to coursework for my gcses when i was awake. 
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    • Posted

      Hi Sophie,

      Oh I really feel the deep pain and suffering you have been through reading your message, and just want you to know you're not alone, the forum here is a good place to talk with others. I had the virus about 10 years ago and the worst part lasted for a year. I can only imagine what it must be like for you to have went through it for so long.

      I do want to offer hope and reassurance that even though you have tested positive again, it doesn't mean to say it will be anything like as bad as before. Because when it's already in your body, it's more of a reactivation and your body is more equipped to deal with the virus than it is first time round. So hang in there and I do believe you will get better and this is just going to be a temporary blip, I really pray that and ask God to help - I believe He will bring healing in your life Sophie Ellen.

      You're doing all the right things taking vitamins and herbs, things that helped me were a strong multi-vitamin per day (I take Immunace here in the UK), high doses of Vitamin C (1000mg-3000-mg per day), ensuring getting enough Vitamin D also, taking a B complex vitamin is also great for energy levels, and immune boosting herbs like siberian ginseng and echinicea can also help.

      Hang in there Sophie, even if you don't feel like eating make sure you are taking the vitamins and herbs to try and help. You are young and going to have lots of good years ahead Sophie, truly I believe that so just take things a day at a time just now and don't look too far ahead and ask God to help, and He will.

      Take care

      Craig

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    • Posted

      Thankyou for your message Craig! I will go out today and get those vitamins you mentioned smile im now signed off work for abit longer as im having my spleen taken out so hopefully a few more weeks rest will help me feel better! smile 
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    • Posted

      Oh do take this time to rest Sophie, I really hope that everything goes well with the spleen procedure and hoping that can make a positive difference and start to get your life back on track again after that. Remember just take as much time as you need, your health and getting through this is most important and work etc secondary. And you WILL get through this and get better again, I do believe that, thinking abot you.

      Craig

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  • Posted

    I had it 12months ago and have been very sick this past year. It's been one thing after another but what helped me was a diet change. I have up gluten ad dairy and then discovered that tomatoes potatoes and red meat also trigger my symptoms.. I did 6sessions of acupuncture and I take pro-biotics and omegas with vitamin D aswel as magnesium oil. I have improved so much over the past 3-4 months but I think the virus is still lingering so I've ramped it up lately drinking veg smoothies and Apple cider vinegar, using essential oils and going for monthly acupuncture sessions. This virus is really hard to beat but there is hope

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  • Posted

    Hi there,

    I was diagnosed with mono two years ago and have continued struggling with it and the effects it left behind for quite awhile. One thing I found along the way that really helped were getting iron infusions. It seems a bit drastic but it helps so much if you're anemic to quickly bump up the iron in your body so that it can better fight off the disease and I found it much better than vitamins. Another treatment I've also heard helps a lot of people is getting infusions of high dosages of vitamin C. From what I've heard it helps to significantly reduce the amount of time the symptoms are present and can help lessen others. I also switched to a vegan diet last year and it really helped me to get my appetite and energy levels back. I'm not sure if you've experienced any of the neurological side effects like fogginess or concentration issues but if you have I've been finding neuro-feedback to be very helpful. Although there is a debate in scientific communities about whether it is just a placebo affect, but hey if you feel better due to a placebo affect, it's still feeling better!

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    • Posted

      Good luck with your appointment at the doctor Sophie Ellen, hoping everything goes well and thinking about you. Yes definitely worth trying some different treatments like acupuncture and taking extra Vitamin C / D, etc. You're doing all you can to help yourself, hang in there!

      Craig

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