Posted , 10 users are following.
As a newly diagnosed person I struggle with what to tell people about this very personal issue.
I know I should not have shame or embarassment but I do because I am a very private person.
What do you tell people from serious to funny ( I am extremely sarcastic)....
??
0 likes, 22 replies
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Alex1968 chris90369
Posted
I think it is important to educate people on LS.
I have told all of my girlfriends. I explain it like a match is going up my genitals every 30 seconds while having a flare up.
They are shocked but educated now.
When I was first diagnosed the doctor thought I had vaginal psoriasis which is also a thing.
Let’s not put a cone of silence on this.
angela0180 Alex1968
Posted
I have come to agree. I don't shout my condition from the roof tops, but I have begun to tell certain people (those in my inner circle) about L.S. As a woman, we are told to check our breasts monthly and get our yearly exams. I don't remember ever being told that I needed to check my vaginal area. I don't have L.S. as severe as most. I have discoloration of that area as if I had vitiligo. I am a Black woman and my doctor said that if I was a white woman, the discoloration would not be that noticeable. I have irritation every so often (more so around the anal area) and I use Triamcinolone, not Clob. was originally prescribed Clob by a Gyno, then found a Vulva Specialist (Thank GOD!) and she prescribed the other ointment. I most likely started L.S. a few years before I noticed the discoloration. I had a hysterectomy, so I don't get monthly exams, so this was not noticed sooner. I have been celibate for over 5 years. I guess at the end of this long post, woman should be in tune with all parts of their body, so that is why I mention it; but again, not to everyone. A year and a half later, I am still trying to fully accept this condition.
sally41666 chris90369
Posted
i agree that sometimes you need to explain why you cant do certain things like ride a bike- i just say ive a skin condition that affects my lady garden and if they ask more i'll tell them! Agree with the sharing info like we do here! Also lately i've had anal fissures which have meant a lot of pain passing stools to the point i loose blood and have to take painkillers- I felt i needed to let work know if i was a little late on occasion! I dont mind telling at all but get that some people just dont want to know and neither should they!
You just need to decide if you need to share then how to term it and dont be embarrassed about your own body! You may find they have the same or similar!
Best wishes xx
MapleSyrup chris90369
Posted
i tell other women, even if i am not super close friends. i wish someone would have told me about it so i would have know that it was LS. i explain its an autoimmune and that its an inflammatory skin condition of the skinf down below, and that sometimes i have bad days or weeks where i just cant make it out of thr house.