What does crp level show? And rib area pain?

Posted , 5 users are following.

The nurse called me today to say my SED was 35, but my crp was way high, like 1. something.  I've been told to go from 15mg up to 20mg.  I've done that for two days, and feel somewhat better in my arms/shoulders, but the rest of me still hurts so badly.  And now even my rib muscles hurt!  Anybody have that, too?

0 likes, 13 replies

13 Replies

  • Posted

    Hi debbie, sorry to hear that you are still experiencing problems. Can I assume that you are newly diagnosed, I say that as you are on 15 mgs? 

    I have been diagnosed with PMR since December 2013, although the symptoms first appeared in the September of that year. Like a lot of patients the pain began in my neck, the right side to be precise, then spread to the whole neck, shoulders, shoulder blades and joints, toos of arms then, bottom, hips groin and backs of knees. The pain and stiffness was on the whole bilateral although always that little bit worse on my right side. About a month prior to my first rheumatologist appointment pain then developed in my 2 thumbs, the outside bone in my left wrist, ribs and my left breast bone next to my sternum. Following preds very quickly all the pain and stiffness reduced and over a very quick period of time disappeared, almost, completely. I had a flare in December last attempting to reduce from 9 to 8 and most of the pain returned including the pain in my ribs, but no where near as bad as pre diagnosis as I upped my preds before all the pain and stiffness could take hold, but this time round the pain and stiffness took longer to reduce and get under control.

    i have heard patients on this very forum also say that they experienced rib pain. I do hope you get the inflamation under control soon. All the best, christina 

  • Posted

    Debbie,

    Yes, I am one who experiences rib pain as well.  My symptoms of PMR were classic except for the rib pain.  The presence of the rib pain was part of the reason why my doctor was initially reluctant to diagnose me with PMR.  But after all the blood tests and MRI's and x-rays which ruled out many of the "baddies," and after seeing my immediate response to prednisone, he acknowledged that I was probably dealing with PMR (although is preferred diagnosis is "undifferentiated infammatory arthritis).

    I'm in the midst of a flareup right now which has manifested itself mostly in my ribs.  

    From reading every one of the posts on this forum, it seems to me that PMR can affect us in so many ways, which can be a hindrance to diagnosing other problems.

    But this forum is great.  Hang in there, read as much as you can, do whatever you can do, and then have faith.  I am a person of faith and don't know what I've have done without it since all this has hit.

    '

    All the best,

     

  • Posted

    CRP is a protein that is produced during inflammation in the body so it shows there is inflammation somewhere but is non-specific. 

    Quite a fe people experience rib pain - in my experience it is often due to myofascial pain syndrome which often occurs alongside PMR and causes knots of inflamed muscle fibres in positions on either side of the spine which can lead to irritation of nerves and similar symptoms to "slipped" discs. The knots in the muscle are concentrations of cytokines, the same sunstances that cause the pain and stiffness in PMR, just it is more local. One pair of the trigger spots is just above the waist - they irritate nerves into the rib cage.

    They can be treated with cortisone injections, manual mobilisation of the hard bit of muscle and many people have found that Bowen therapy is very beneficial.

    • Posted

      I would like to try Bowen Therapy.  I see Reno has some places to go.  I would hope my insurance would pay, but I might even be desperate enough to spend some money for it.  Thank you.
  • Posted

    Thanks for the info and support again.  I have had the PMR since Jan. 2014 (or before).  First felt very well after prednisone started, then gradually reduced to 8 mg, and then started a flare up after pneumonia this Jan. and have not gotten relief since going up to 15 and now 20.  I feel a smidgen better after three days on 20, but still pain on both sides of my body from my shoulders down to my ankles.  Life is very hard for me right now and my depression isn't being helped with all this pain!  Try to keep my sense of humor and the courage to keep on keeping on.
    • Posted

      It is often more difficult ot get a flare under control - and you probably need to rest more to give things a chance. What about some complementary therapies? Practically as usual I would suggest Bowen therapy - it may not all be PMR.

      And is the pneumonia all gone?

    • Posted

      Thanks Eileen, yes, when I had the rib pain badly last week, the dr ordered a chest xray which showed my lungs were good and ribs were fine.  She said she could see several spots of arthritis on my spine.  My rib pain subsided somewhat as I rested thoroughly the next few days.  Like all of you, I just want so badly to do the things I need and want to do, but even driving will make my arms flare.  But I am resting more.  The pain dr wants me to start water therapy, so that is my next step.  Just the thought of moving my arms and legs, even in water, worries me, but I can only try; maybe it will help if it is gentle.  I have three different drs who concentrate on their interests: the pain dr thinks it is mainly fibromyalgia, the rheum. says it is polymyalgia and the bone man is concerned with my joints.  I think it is all of those, plus depression.  
    • Posted

      Any pain that goes with pred is PMR - whatever anyone says, pred does nothing for fibromyalgia. The depression could well be the PMR - depressive mood is part of the clinical picture too. 

      I really would suggest a few sessions of Bowen therapy - you have little to lose, it will probably help the rib pain and you might be surprised what else it helps!

    • Posted

      Thanks Eileen, I will.  Woke up this morning with some spirit and not as much pain; maybe the pred is one its way to help me now.
  • Posted

    Debbie I think It hits you wherever it likes at times.Not had rib pain but practically everywhere else.I am on 1preds daily now and my aches are mostly in my hands,paracetamol does seem to help but feel very tired at times. However that's where I first started with it.It's just 2years now for me so hopefully it's going away now. Good luck.
  • Posted

    Debbie I think It hits you wherever it likes at times.Not had rib pain but practically everywhere else.I am on 1preds daily now and my aches are mostly in my hands,paracetamol does seem to help but feel very tired at times. However that's where I first started with it.It's just 2years now for me so hopefully it's going away now. Good luck.
  • Posted

    Debbie just a thought I have only ever been told of my Esr blood test results not sure what that is.Doc said it was 38 to begin with and is now in the Normal region of 12. Don't know if that helps but would be interested to hear of other comments. My Doc diagnosed me at the visit without a test had never heard of Poly before,within 48hrs I was on Pred and was pain free after 5 days.I started on 15 mgs and worked down to 1mg.Wish my energy would improve though. But I am 75but very active and play a sport.
    • Posted

      Thanks Beatrice.  My dr has a computer site which shows my test results soon after I have a lab.  The blood test you mention is called SED here and mine was 40 at first.  Went down to 20.  Then up to 35 and then 39 most recently.  I would love to be at 12!  I am still taking 20mg now for five days and don't feel that much better, just a little.  I can't figure it out!

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