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What does it feel like to have Klinefelters' syndrome?

Posted , 68 users are following.

XXYGuy
XXYGuy

Another contributor wishes to discuss what it feels like to have Klinefelters' syndrome, so I thought I'd start a discussion on that topic, see what comes of it?

I'd like to be able to choose XXY as a place to put this discussion, then we can chat about what it feels like to be fat, or to have gynaecomastia, or to be sterile, and any other disease associated with being XXY.

6 likes, 399 replies

399 Replies

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  • SunRisen
    SunRisen XXYGuy

    Posted

    The bottom line is so what? There are a multitude of conditions that anyone of us can be born with from a mixed bag of inherited genetic material. These tend to exist almost as though they are "blue prints" until they are triggered by specific governing factors. For me the terminology of pre-pubertal has nothing to do with children when the term is appreciated as a genetic blue print which existed before puberty. You need to remember that these articles were not written for general public consumption and that the language exists within a more complex frame. But again so what? *metaphorical shrug*

    I have that article in front of me which consists of 7 pages of info and depression is not a noticable title within the article and neither is it a defining thread. 

  • nick2437
    nick2437 XXYGuy

    Posted

    im 19 and just found out i have Klinefelters' syndrome. i wanted to know any advice anyone can give, i was kinda pissed and stormed out of the room when  found out and i just want some help if you can give any
    • XXYGuy
      XXYGuy nick2437

      Posted

      It's such a broad ranging topic it's hard to know where to start.  It's not like you can do anything about your karyotype, and only doctors can treat your symptoms.   
  • melly555
    melly555 XXYGuy

    Posted

    hi ... i am a XXY but i have never been a male to my knowledge, I only just found out recently that technically I am a genetic male, yet i have  been married to a man twice and had all the appearances of a female including ovaries, fallopian tubes and a womb. I did have a total hysterectomy when i was 22 because i had a tumour inside that would have killed me otherwise. I was told then i had chromosome abnormality but nobody specified what it exactly was so i never thought anything about it. Now i am traumatised to find out that i am and always have been a genetic male. 
    • XXYGuy
      XXYGuy melly555

      Posted

      If you're a genetic male, the all of use XXY males must be genetic females!  Notice I say 'if!'  

      Hello, how do you do?

      One of the more rare aneuploidies I have come ascross before, I've even read of one XXY female who bore a daughter, who is also XXY. I'm positive more of people like you would be found if more extensive genetic testing were done, worldwide.

      In my opinion you're not a genetic male, you're all female with a Y chromosome, like I'm all male with another X chromosome.      

    • XXY
      XXY melly555

      Posted

      Hi melly555, why of course there are XXY females and not just phenotypically XXY males that identify as females, where perhaps you might meet with medical consernation becasue medical thought is XXY is a male condition, your existence smashes theories, but you aren't alone there are more recognised XXY females around and if you desire to know or connect with others the facebook group XXY friends is a good starting point as is the Brain Trust; XXY Intersex.
    • XXYGuy
      XXYGuy XXY

      Posted

      I think discussion of intersex should not be in this thread.  I think you should start your own thread in this category for that type of dicsscussion. I'm be more than happy to join in, but not here as it is irrelevant to the theme,  I won't start a discussion on intersex as 1, I'm not intersex, and 2, my opinion is so well formulated no discussion is warranted. 
    • XXY
      XXY XXYGuy

      Posted

      Graeme I am fully aware of your attitude to afore mentioned your blog is indicative of such beyond what I have also been told, but my  recommendation to Melly was for her to seek help where it might not be forthcoming otherwise through the fallacy that all XXY's are male. Most XXY support groups are pro male, where you may understand a female might feel alienated, therefore it is my intention to direct non male identifying XXY's to where they may find comfort and understanding.
    • XXYGuy
      XXYGuy XXY

      Posted

      I have alrteady suggested Melly555 goes to a different group, and your suggestion is as good as any.  Melly doesn't identify as female, she is female, she always was female, there just appears to be some crackpot doctor in Australia trying to convice her otherwise.  

      XXY males born with male genitalia, identifying a female, these days are said to have Gender Dysphoria, which I understand has been changed from Gender Identity Disorder.  Unlike XXY and KS being completely different, GID and GD are exactly the same disease just with different names.    Like AD/HD used to be called Minimal Brain Disorder.

      As for down right fakes, that I detail in my blog, they are despicable disgusting human beings who have no right to claim anything, and ought to be avoided like they were the personification of the plague!

    • Gowithbazza
      Gowithbazza XXYGuy

      Posted

      Excuse me but Gender Dysphoria or Gender Identity Disorder Isn’t a disease it is a “condition” and by you clamming it to be a disease you are misleading people i.e. Gender dysphoria is a “condition” where a person experiences discomfort or distress because there is a mismatch between their biological sex and gender identity. But there again it comes as no surprise that your statements are misleading. 
    • XXYGuy
      XXYGuy Gowithbazza

      Posted

      No I won't excuse you.  By excusing someone I'm supposedly agreeing they've done or said something wrong, and I don't consider you have, yet.

      So it is not true to say something with different titles, one old one new, is exactly the same thing, well obviously I disagree, and as I stated earlier, with your request for me to join some XXY run Facebook group, merely mentioning the word 'disease' will cause great consternation.  It appears that I am one of the few XXY's who readily accepts he's treated to prevent the symptoms of DISEASE from showing, and that the word 'disease' has no negative connotations. 

      The medical profession is not interested in healthy people. If the medical profession has a description for something, it is because it is not normal. So, see me say "I don't suffer gender euphoria, I enjoy it"  smile

  • melly555
    melly555 XXYGuy

    Posted

    By the way I have no outer appearances of a male and apparently i have gonads somewhere inside me which stresses me out big time... lol. Hormone specialists tell me there is no way i could ever have been considered a female although i am not gay ..i like men, have always had men as partners  and i look female, with all the female bits. The doctors ask me when i had a sex change and i said never, i have never had that cos i didnt know i was a male, until now. They say i lie and that any female born with XXY would die within a few days as this combination of chromosomes are not possible for life as a female. OH god ... what will i do, what am i?  I feel like I must be an abomination to nature and i have been told that if it happened these days i would be terminated before i was born. GREAT!!!!!
    • XXYGuy
      XXYGuy melly555

      Posted

      Since you had a hysterctomy, I assume the ovaries were removed, although I do know they don't have to be removed, why would you be stressed out to know you have ovaries?  

      You definitely don't have 2 testes, if you did you'd be incredibly ill. Popular myth says there can be two ovaries and two testes in the same individual, but it is just a myth.  I suppose you could have scans to see if a testicle was present, and if it was you might be considered to have Androgen Insensitivity Syndrome, which would explain why you have no masculinisation.  

      A woman with AIS usually has XY sex chromosomes, no female reproductive organs, internal testes, only female external genitalia, and always thinks of herself as female.  There are varying degrees of AIS, in that some masculinsation takes place, but since you don't report any then I'll assume you have Complete Androgen Insensitivity Syndrome, CAIS.

      The information you have on people dying because of being XXY and female is just plain nonsense.  You have no reason to be concerned in that way at all.  There are plenty of XY females who lead perfectly normal female lives, apart from infertility.  

  • melly555
    melly555 XXYGuy

    Posted

    Sorry for talking to much...its the girl in me ...LOL.... but since i was brought up as a girl and to all appearances WAS/AM a girl, when i was a teenager (before the hysterectomy) i had monthly periods just like any other girl, although mine were a bit erratic, so i just wondered if any of u guys had this? I know its a silly question but since i have been told i am male, then how could i have had this "girl"thing??? It doesnt make sense, but i have  had DNA testing done and yes i am a male.
    • XXYGuy
      XXYGuy melly555

      Posted

      There is a report out there of an XXY female with Androgen Insensitivity Syndrome, and she is described as having Klinefelters' syndrome by the nutter who wrote the report. Just becaue some quack gets a doctorate is no reason to assume s/he knows what they're talking about.  I read the report at some doctors' website from Hawaii, and his name just slips my mind right now, he does/did a lot of work for peopkle born with Disorders of Sex Development, and perfectly normal males butchered by the barbarity of circumcision.  He's a PhD doctor anyway, and he can't be that hard to tract down, nor his website.    
    • XXY
      XXY XXYGuy

      Posted

      Perchance are you thinking of Professor Milton Diamond (Retired) of  Hawaii University- Pacific Centre for Sex and society? A pretty forward thinking chap.
    • XXYGuy
      XXYGuy XXY

      Posted

      I link to the guys article, of course he's Milton (Max) Diamond, at least I think he's called Max?  Anyway, he's noit all that 'forward thinking' when it comes to XXY males, even if he doesn't use the same words these days, he thinks we XXY's are "male pseuohermaphrodites, with small penises & low sex drive"  If you werer to go to my Facebook page you can find a photo of me when I was 12, with summer attire, and my siblings, and I dare anyone to claim they see anything but an ordinary young male person.   Milton Diamiond is biased toward abnormality, even rewriting published reports of others to suit his preconceived ideas. In fact there is very little diffeerence between what he's done and what a contemporary of his did, a fellow by the name of PhD. Dr John Money.  

      It appears to me these PhD. doctors have no scrupels, and very distinct personal bias. 

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