Posted , 15 users are following.
Hi, wondered if those suffering with Costo could describe for me (as best you can) exactly what your pain feels like and where in the chest are it is situated and/or radiates to?
Thanks
0 likes, 23 replies
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AMK1968 sarah77498
Posted
Just wondering... Do any of you have other health issues? I have Mitochondrial Disease (along with another what's considered "rare" disease) and think my Costo may have started as a result of the Mitochondrial Disease even though it hasn't been an issue up until 1 1/2 yrs ago.
I try to stay positive thru my situations however, being sick and in pain every single day of my life the last 9 yrs does take its toll. I try to connect the dots on my own sometimes when I interact with others who have some of the same conditions I deal with such as the Costo so just curious if anyone else has other conditions as well that may play a role in this?
lachastity04089 AMK1968
Posted
I was having stomach problems and my gp referred me to a GI doctor who decided I should have a scope done with came back that I had H pylori. And I was treated for it but it took 3 different rounds of treatment to cure it. It wasn't until after that, that I started having chest pains and went to the ER over 10x thinking I was having a heart attack and was later diagnosed with chest wall pain/ Costochondritis and severe anxiety. In the mist of all that I was diagnosed with high blood pressure
grace28398 sarah77498
Edited
christina85968 sarah77498
Posted
I believe I have this though not diagnosed. I've been tracking my symptoms and it seems when I'm ovulating I get heavy chest pains, sore muscles (glands?) Surrounding my sternum and the pain radiates to my upper shoulders and into my head. Sometimes my left arm feels achy and the glands at my elbows and palms are sore to touch. This lasts several days and then suddenly subsides. I've had all my organs checked and EKG done on my heart. All fine. I also have adenomyosis and diastisis recti, wondering if these are contributing factors to my costo. I literally feel your pain! Anyone tried any natural remedies? Currently using a heating bag and drinking dandelion tea. Not helping much though...
michael21687 sarah77498
Posted
I have never been officially diagnosed with costro, but it was mentioned as a possibility. I've had 3 chest x-rays over the course of 9 months, 3 EKGs, blood work of all kinds, an abdominal ultrasound and an abdominal CT. All the tests were basically normal. I say basically because the abdominal CT did show some mildly enlarged lymph nodes in my lower right quadrant, but they're thought to be not much of concern since they're in an area that I don't have pain. I guess if they were larger and causing pain they'd be more worried that they're something sinister. I have a follow-up abdomen CT and a new chest CT at the end of the month. Seemingly that will be the end of the road test wise for me.
My pain started in JUN 2020 as a "being poked with a safety pin" sensation in various areas of my ribs and a little cramping in my upper abdomen. That went away at the end of the year and changed to a sharp pain in my lower left chest when I twist and a dull ache in my right chest. The left sided pain lasts a few weeks, is gone for a few days, then comes back. The right sided pain is relatively new and seems to be better at night. I assume since the pain keeps changing it's not life threatening and more and more likely costro.