What foods, supplements and treatments can people recommend for CFS/ME?

Posted , 3 users are following.

I have heard from other sufferers that coconut oil and aloe vera juice can really help boost energy levels and help with stability and recovery. 

I have a list of good foods to eat to aid the condition if anyone is interested, I try to stick to this diet, which has to be dairy and gluten free due to intolerance, but I was wondering if anyone knows of or can recommend any other good foods, supplements or treatments? 

Also if anyone has used aloe vera for their treatment, either in juice form or tablet then please let me know how well it worked for you. I have tried the juice when it was on special offer and it did seem to make a difference, but it has been too expensive to try for a while and I may have to try tablets!

I highly recommend the coconut oil treatment, you can get jars of it in health food shops and some supermarkets fairly cheaply, apparently a couple of tea spoons of it at bedtime is the best way to use it, and keep another jar to use as cooking oil as it's so much healthier and more beneficial that other cooking oils.

0 likes, 4 replies

Report / Delete

4 Replies

  • Posted

    Hi there - i have been using coconut oil...i find it gives me energy and i take during day, usually a spoonful or two in a fruit herbal tea...not sure if nightime would be best, as its supposed to give energy isnt it?

    I am also just starting aloe vera juice, so will let you know on this...I have also taken magnesium malate, which help with pains...vitamin c, b complex, fish oils, d - ribose powder and just about to start bee pollen tabs 

    Report / Delete Reply
    • Posted

      I take it in the evening and bed time cos I found that during the day it would give me a short burst of energy but then a heavy crash which was not good! I could try having it in tea though, that might help, I drink a lot of herbal and fruit teas!

      Ok, I take vitamins but haven't seen magnesium malate, ribose powder or bee pollen before so I'll look into those!

      Report / Delete Reply
  • Posted

    Hi BethyLinde,

    The cause of CFS has not been established yet and this means that there has been no specific change in diet or supplement proven to cure or consistently eleviate symptoms of CFS. The British Dietic Assosciation's research has, in fact, shown that a healthy, balanced eating plan is more beneficial than a resctricive diet or complicated regieme. It is recommended that this diet should include: wholegrains, such as brown rice, quinoa and barley; beans, pulses and nuts as a source of protein, healthy fats and energy especially during periods of low appetite; and a diverse, rainbow, range of fruits and vegetables each day to ensure you have an adequate intake of fibre, carbohydrate and vitamins and minerals. If you do take a vitamin and mineral supplement make sure you do not exceed the RDA and remember a natural source is always better as you benefit from the whole food. Omega-3 fatty acids may help elevate pain symptoms in CFS; these can be found as a supplement, but try and encorporate oily fish such as mackeral or sardines into your meals a couple of times a week.

    This can sound like a big undertaking, but the best advice I have heard to ensure a healthy diet especially during a CFS relapse, is to make sure your cupboards are stocked with healthy, long life food so you can always make a nutritional meal - things like tinned vegetables and fish, soups and sauces, pulses and beans, cereals and nuts. Similiarly, cooking bigger batches of a healthy balanced meal and splitting it into portions to freeze means that there is always something that requires almost no effort that you enjoy even when you feel most drained.

    If you haven't already been offered Cognitive Behavioural Therapy by your GP, I would make an enquiry about it at your next appointment. It helps you come to terms with your condition and then develop strategies to manage symptoms and how they can negatively effecting your life. I find meditation and mindfullness techniques compliments CBT very well as well as gentle yoga in order to encorporate structure in the day, relaxation and gentle muscle exercise. The effects of this kind of treatment might not make you feel instantly better, but with consistent and continuous practise they can be hugely beneficial in overcoming CFS.

    Finally, there has been a small research study that has suggested chocolate with a higher cocoa solid content (ie dark chocolate) might have have a benefit in fatigue scores as well as depression and anxiey symptoms - any excuse for a little chocolate is good for me! 

    If you are concerned about your nutrition and how it effects your CFS, remember to speak to your doctor and maybe consider seeing a recognised, professional nutritionist. 

    Report / Delete Reply
    • Posted

      Thanks for the tips!

      I eat a very balanced diet with a lot of fresh fruit and veg, I also have fish several times a week so I think I'm good on that front.

      The list I have suggests many of the things you've mentioned, I have underactive thyroid as well so I eat well for both conditions.

      My list includes foods rich in iodine, Selenium, fatty acids, Omaga 3 & 6, copper and iron for the thyroid. For ME it's much the same with a good variety of beans, nuts and seeds, fruit and veg, fatty acids which are anti inflammatories, protein which helps stop fatigue, pain and muscle weakness, and whole grains including brown rice, quinoa, oats and so on.

      Oh I love a bit of dark chocolate and have found it helps fatigue in the evenings when I treat myself. The darker the better, I currently have 2 bars of 85%! Yummy!

      I have actually started CBT as part of therapy from BEME, so that's good to hear it can also help with ME! 

      I have had to do a lot of self help and wellbeing stuff the last few months after my relationship ended, anxiety, depression and low self esteem where big problems, but I've managed to get loads of help and am doing much better!

      Meditation was one of the first things I tried and just 2 sessions helped me hugely, I regularly use relaxation techniques suggested to me by my ME specialist.

      I've been wanting to do yoga but there's no classes in my area, but I'm hoping to give Pilates a go soon.

      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up