What happened to me via prednisone
Posted , 12 users are following.
I'm not advocating stopping prenisone at all, and I still have to take it for the PMR pain, but I was one of the ones you hear about who suffered side effects of the worst degree. My back began to hurt about half a year ago, and increased until one day I twisted just a bit too much and bam! fractured my back. I had developed osteoporosis. I had a kyphoplasty. Went home after rehab and during a simple act of putting on socks fractured another place. Same deal wih rehab after. Now home with continuing PMR pain that makes me keep taking pred. I have no answer. By the way, I toook meds for bone health, too.
0 likes, 47 replies
lodgerUK_NE DebbieHurts
Posted
Did you take Alendronic Acid,
Were you prescribed and given it when you were first diagnosed with PMR?
What date were you diagnosed?
DebbieHurts lodgerUK_NE
Posted
elizabeth40672 DebbieHurts
Posted
lodgerUK_NE elizabeth40672
Posted
Have you had Dexa scan - if not ask for one and insist, this tells you the 'state of your bones' and should be done after six months on Pred. Then once you know you have options................and the National Osteoporosis website has all the drugs and you can choose. Don't just take AA, research it. And there is a thread on AA on this site.
elizabeth40672 lodgerUK_NE
Posted
Yes had Dexa scan and positive in back and ostopina in hips. Different advice from different Dr's. One saying I should take Alendrotnic Acid another saying I shouldn't. I'm 50 so feel that I should put it off as long as I can so can really benefit when I need it. Wont have another scan for another 2 and a half years and anything can happen by then.
lodgerUK_NE elizabeth40672
Posted
elizabeth40672 lodgerUK_NE
Posted
I am due to go back to the doctors soon so will have another chat to her. I'm feeling ok at the moment but need to keep OP in mind.
Michdonn DebbieHurts
Posted
DebbieHurts, very sorry to hear of your problems. Could you tell us more about what you have taken for bone health and did you have a Bone Density Scan? Better luck on the rest of your journey. Think positive. 🙂
sandy65909 Michdonn
Posted
I am a bit concerned because I have osteoporosis, had Prolio last year and now Dr. will only give me Reclast because she won't use Prolio when patient is on steroids. I am decreaseing Pred and went from 25mg to 24 mg in 2 weeks. I want to decrease another 1mg starting Wed. but I have more pain than usual today because I think I did too much this weekend. Any advise about decreasing? Should I try the 2 weeks method again or 26 day DSNS method? My rush is only because of osteoporosis but rather be safe than sorry. Thanks.
Michdonn sandy65909
Posted
sandy65909, as you know we are all different, I did to much last week, started to get PMR pain Friday afternoon. Was at 15 mg day at taking 12 in morning was going to take 3 at bedtime, up that to 8. Also took 20 Saturday and Sunday. Felt good last evening, reducing to 17.5 for 3 days, if no PMR pain will try reducing to 15 again. I think I am lucky normally I am PMR pain free. Keep smiling 🙂
Michdonn
Posted
sandy65909 Michdonn
Posted
Yikes! I can't imagine varying my dose! I'm in a bit more pain so I'm just resting. Skipped the gym did more self care. Went to physical therapy. I guess I'm too inexperienced to be creative with my Pred. dose. I want a specific plan and don't want much deviation unless necessary. This illness is full of surprises! Thanks for the smiling advise!
Michdonn sandy65909
Posted
sandy65909, this past spring I was in a wheelchair, following directions, now I do what I think and tell my Rheumy after the fact. She gets upset, but I am doing what I need to do.
Yes I am still smiling 🙂
sandy65909 Michdonn
Posted
Glad you're smiling! I am def following your lead with my rheumy's blessing. She said to decrease slowly any way I want. Being new and experienced, I seek guidance from those ahead on this bumpy road!
macas02 sandy65909
Posted
Sandy I have tried Physio for my neck & shoulder pain but for me anyway it made my pain worse and I ended up with a flare! I was on 2mg of pred now on 10mg. I know we are all different but perhaps the physio is just too much. I have had PMR for 7 years...
sandy65909 macas02
Posted
My therapy is terrific...massage, heat, works on my wrist (tendinitis) and I do very light exercises to strengthen back and shoulders. So sorry to hear it made you worse.
Hope you are feeling better. 7 yrs. is a long time! Are you able to do what you like? I can't do much but a little light weights and short Zumba. I have morning and afternoon rest periods! I am not sleeping enough and can't nap.
lodgerUK_NE macas02
Posted
Bowen Technique - I call it 'White Witchcraft'.
Put 'Tom Bowen Australia' into your search engine.
Non Invasive and the best thing about it is that if three one hour sessions for three consecutive weeks and no improvement, they will tell you - it is not for you.
If you do decide make sure you have a trained person and listed in the Bowen Practioners list.