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My son is now 29, we have suspected he has Cushings since he was 8. Unexpected weight gain, but only around his torso and on his face, he now weighs more that 330lb 23 stone (our scales only go that high), he has the buffalo hump, the red stretch marks and the temper. He had a blood test done 8 or so years ago in the morning which we were told showed in range. Knowing what I know now about 'in range' I should have asked for the copy of the results. Up to date knowledge now says that the morning blood test is useless, that it should be an evening one.
Well what has happened was that being Hypothyroid myself and having to self test and self treat (those 'in range' criterior) I knew how to get my sons 4 point adrenal saliva test done privately, I was mainly testing him to try and find out why he wasn't sleeping. Wired and tired all the time. The results came back, it took a couple of weeks to figure out what was nagging me, it was his daily cortisol level, it was way too high, well out of range. So I've gone to the doctors with the results, the doc said she would refer him to an Endo based on the results. A letter came today saying they had to do the usual thyroid, diabetes, liver function, prolactin etc tests before he can be reffered to an endo.
We have researched this loads in the past, and understand in a fairly well edicated way what is going to happen. My main question now is, how long is this going to take? Are we talking weeks (not likely with the NHS), Months, years? Is there a ballpark figure in the UK?
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