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What I've been waiting for. Estimation of life expectancy newly diagnosed men with PC.

Posted , 7 users are following.

Sailor_Sam
Sailor_Sam

I was diagnosed 4 years ago at the age of 49 with PC 3+3 and have been on active surveillance since then with my PSA going up and down at regular intervals. 

The doctor, even when newly diagnosed, seemed very keen for me to be treated but when looking at the evidence online, the research appeared to suggest many people get treated either too early or when they should simply remain on Active Surveillance.

Making that decision is so difficult and everyone agrees it's a personal choice but this tool I've come across, I personally find very helpful. When I put my own health stats into it - the figures say 0 people out of 100 would have died of PC in 10 years and in 15 years just 3 out 100 would have died of untreated prostate cancer.

Although all tools may not be 100% accurate it is evidence based and does for me at least, provide some reassurance - I hope it may do for you too.

http://prostatecancerinfolink.net/2016/02/16/estimation-of-life-expectancy-for-newly-diagnosed-men-with-prostate-cancer/

https://webcore.mskcc.org/survey/surveyform.aspx?&preview=true&excelsurveylistid=4

 

0 likes, 22 replies

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  • charles61038
    charles61038 Sailor_Sam

    Posted

    Your 3+3 Gleason score is good for low risk PC. I was diagnosed with the same numberr. My PSA was at 5.2 which also put me in the low risk category. I had no symtoms what so ever... just my PSA was high during my annual physical. After my biopsy, my urologist told me about treatment options and basically told me that with my low numbers, any treatment option would work for me. He also said I could do the active survailence. I chose not to do that because I felt like dealing with the PC now while I am younger and in good health, it would be easier to deal with rather than later when I might have other health issues in addtion to the PC. I researched many options. I chose brachytherapy (low dose radiation seed implants) as it seemed to be the best choice for me. It is a one time treatment with a very good success rate. It has been 5 weeks since I had the treatment and all seems to be going well. I am having some side effects, but nothing terrible. All treatments have side effects, but should be gone in time. Keep an eye on the PSA and the gleason score. According to my radiation doctor, the half life of the radiation seeds is 2 months. After that time, the side effects will become less and less. I wish you luck in your journey.

    Charles

    • Sailor_Sam
      Sailor_Sam charles61038

      Posted

      Hi Charles, thanks for sharing that. I can understand your reasons for wanting to deal with it now, and we all know it's a personal choice.

      best of luck for the future.

    • MK51151
      MK51151 charles61038

      Posted

      I was accidentally diagnosed with prostate CA Gleason 6 after my TURP on June 1st. One of the prostate chips Cana back positive. Since I am recovering from TURP, my urologist recommended to wait 3-4 months  than he will do prostate biopsy. 

      Hearing the news about prostate Ca was shocking for both my wife and I.

      Knowing, I have ca and waiting this long to get some more info thru biopsy is emotionally very hard.

  • vincentb
    vincentb Sailor_Sam

    Posted

    You can live all your life witth PC .if its contained and more importantly slow growing. But if its aggresive like mine you take action my T2c gleason 9

    Psa 18.6 was removeed along with seminal vesicles & lymph nodes in febuary.

    Psa psa now 0.050 . Feel great now backk scuba diving already still wearing pads

    For dribles. Hope you get sorted

    Vin

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