What is CKD?
Posted , 7 users are following.
I was given a print out of my notes recently as I was going for a scan after hurting my foot. While browsing through it says I have CKD stage 3, and have had so since March 2013, how did that happen? When I go back through my notes I see that my kidney function was normal until January 2012 and had never been mentioned to me, I changed GP in July of that year as wasn't being listened to for chronic pain, it turned out I had ovarian cancer, anyway, considering all the bloods etc, and chemo, nobody has at any point mentioned this. My GP had said my kidney function was a bit iffy but surely this is more than iffy!!
So what is it, I have googled and not been very happy with what I have read, it's keeping me awake stressing, plus I am due a CT scan next week tfor my oncologist who asked me if I have any kidney probs and i said no.
Any thoughts or advice is welcomed
0 likes, 9 replies
kearn
Posted
Wots
Posted
You should also be referred to a hospital specialist which I'm assuming you have been.
Stage 3 is one stage from complete failure.
My wife was fist diagnosed at 20% function so they started monitoring her from then on because they didn't know where on the slope she was or how steeply her failure was occurring. Within a year she dropped to 10% and started peritoneal dialysis (Water bag system which allows more freedom).
There are different treatments but not all are suitable for everyone.
Personally it sounds like your GP is hopeless and many are just lately. You need to be strong and insist on what you want in this case it sounds like urgent referral to a RENAL CLINIC.
If you GP pussy's around too long take it out of his/her hands and walk into AE (Not the best way but it will force the issue).
christine30769 Wots
Posted
jo11924
Posted
MrsO-UK_Surrey
Posted
Jo - good luck with the auto immune disorder. I succumbed to one of those about 7 years ago necessitating steroids for 5+ years, but it went into remission just over a year ago. Hope your's might do the same.
jo11924
Posted
Jo
Wots
Posted
CKD3 means one level from complete failure so you should be seeing a renal unit surely.
My wife was at level 3/4 probably more a 4 when it was first discovered she was assessed to be having 20% function after attending a consultation and confirmation by biopsy a month or so later.
She fell to 10% within a year
Everyone's different but I believe its not wise to leave things to chance its definitely worth going back to the GP and discussing what should be done. The hospital monitored my wife for a year before she finaly dropped to 10% function where they normally look at starting dialysis.
jo11924
Posted
years, I have regular blood tests and hospital appointments to monitor them. I say I don't worry about them because it wouldn't change things if I did. If I have any concerns I will be straight on the phone and won't
be fobbed off. Good wishes to you and your and your wife.
Jo
Wots
Posted
Nice to hear.
Keep up with the tests though things change and quite dramatically.
Our hospital has been very good shame the GP's Office wasn't so vigilant otherwise something might have been able to have been done much earlier and maybe, just maybe prevented complete renal failure.
Russ