What is CKD?

Posted , 7 users are following.

I was given a print out of my notes recently as I was going for a scan after hurting my foot. While browsing through it says I have CKD stage 3, and have had so since March 2013, how did that happen? When I go back through my notes I see that my kidney function was normal until January 2012 and had never been mentioned to me, I changed GP in July of that year as wasn't being listened to for chronic pain, it turned out I had ovarian cancer, anyway, considering all the bloods etc, and chemo, nobody has at any point mentioned this. My GP had said my kidney function was a bit iffy but surely this is more than iffy!!

So what is it, I have googled and not been very happy with what I have read, it's keeping me awake stressing, plus I am due a CT scan next week tfor my oncologist who asked me if I have any kidney probs and i said no.

Any thoughts or advice is welcomed

0 likes, 9 replies

9 Replies

  • Posted

    Chronic kidney disease.In patients with chronic kidney disease before clinical symptoms appear obvious, often has experienced a long asymptomatic phase, if not through the relevant checks, difficult to find a relatively early stage patients. However, many "clues" can also occur in the early, such as: low back pain, edema, hypertension, anemia. Some people think that long-term back pain "is to sit for a long time playing mahjong," puffy "not sleep well." I wonder if you have not received kidneys had issued alerts?
  • Posted

    Your GP should be fully explaining this!

    You should also be referred to a hospital specialist which I'm assuming you have been.

    Stage 3 is one stage from complete failure.

    My wife was fist diagnosed at 20% function so they started monitoring her from then on because they didn't know where on the slope she was or how steeply her failure was occurring. Within a year she dropped to 10% and started peritoneal dialysis (Water bag system which allows more freedom).

    There are different treatments but not all are suitable for everyone.

    Personally it sounds like your GP is hopeless and many are just lately. You need to be strong and insist on what you want in this case it sounds like urgent referral to a RENAL CLINIC.

    If you GP pussy's around too long take it out of his/her hands and walk into AE (Not the best way but it will force the issue).

    • Posted

      i got stage 3 also...month go i found out after having many months of migraines.... tests came bk...thn i said why do i feel so drained...that wa swhen he decided to do kidney function test and other bloods... when i firs thad results i was at 59% then it went down to 49...then 44% ... i was told to excerise and loose some weiht and come bk in 6 months... it has gone up to 55%... i know many are having this and i,m not alone...but everytime i ask questions i get...it mild...you could go run a marathon...well maybe so but some days i feel real tired
  • Posted

    Like you, I found out I have CKD stage 3 some time ago when I received a copy of a letter showing details of my health conditions. When I queried this with the GP he told me I've had it for some time but nothing to worry about. He emigrated to Australia about five years ago so I know I've had it for some time now. I also have an auto immune disorder, think it was caused at a time when I was very ill and being pumped full of all sorts of life saving drugs ( nothing to do with CKD). The reason for telling you this is I attend the Rheumatology clinic 6 monthly and routine blood tests show kidney function as well as other results. I know my kidneys aren't functioning as well as they should but so far this hasn't caused me any big problems and I don't worry about it. I'm sure if you insist on being kept up to date with the CKD and let your oncologist know it may help to decrease your worries.
  • Posted

    I have a sole kidney (had one removed 47 years ago) and some 6 years ago was diagnosed with CKD3 through an eGFR blood test, with a reading of 54. Normal is considered 60 and above. In the meantime it has reduced down to different levels, on one occasion as low as 44 and just recently back at 54 - the latter improvement probably due to commencing BP medication. The Kidney Association tell me that many people were suddenly being diagnosed with CKD3, and my friend's GP has told her that the Government opened a can of worms when they gave a directive some 6-7 years ago to GPs to carry out the eGFR test as as a matter of routine when carrying out other blood tests. He said that loads of his older patients were panicked into rushing off to renal consultants as a result.

    Jo - good luck with the auto immune disorder. I succumbed to one of those about 7 years ago necessitating steroids for 5+ years, but it went into remission just over a year ago. Hope your's might do the same.

  • Posted

    Hi Mrs O ,My GP told me much the same as your friends GP told her, a new ruling had been put in place meaning patients records had to show CKD3 if the reading was lower than 60, clearly it caused distress to a lot of people. I accepted what my GP told me and haven't worried about it. I don't take any medication for the kidneys but do for the auto immune disorder. Hope all goes well for you.

    Jo

  • Posted

    Jo,

    CKD3 means one level from complete failure so you should be seeing a renal unit surely.

    My wife was at level 3/4 probably more a 4 when it was first discovered she was assessed to be having 20% function after attending a consultation and confirmation by biopsy a month or so later.

    She fell to 10% within a year

    Everyone's different but I believe its not wise to leave things to chance its definitely worth going back to the GP and discussing what should be done. The hospital monitored my wife for a year before she finaly dropped to 10% function where they normally look at starting dialysis.

  • Posted

    Hi Wots, thank you for your concern. At present my kidneys are stable and thankfully have been for some

    years, I have regular blood tests and hospital appointments to monitor them. I say I don't worry about them because it wouldn't change things if I did. If I have any concerns I will be straight on the phone and won't

    be fobbed off. Good wishes to you and your and your wife.

    Jo

  • Posted

    Jo,

    Nice to hear.

    Keep up with the tests though things change and quite dramatically.

    Our hospital has been very good shame the GP's Office wasn't so vigilant otherwise something might have been able to have been done much earlier and maybe, just maybe prevented complete renal failure.

    Russ

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