What is fibromyalgia like for you

Had a few days like that too. Just totally drains me at times and then u say to myself I couldn't not b like this forever x

Wish I had a positive response but instead I feel the samesuch a struggle .

i have 14 of the 18 points affected.  The only part of my body not effected is the middle of my back.  

Just learning i have have to take everything slow.  Breath, rest,  move as much as I can cause when I stop moving I turn to stone in a matter of minutes

 

I feel the same as you sometimes. I have fibro, m e, arthritis and chronic back pain which no one seems bothered to sort out for me. I get so frustrated and desperate sometimes i just want my suffering over. But then i get a few odd days that give me hope and see my grown up kids and realise i need them as much as they need me. Lifes hard just try and take things slower and try and enjoy moments

Every time I get a good week I think great I am getting better.. Then the fatigue kicks in and I am in and out of bed all day.. Or its the pain and I keep telling myself good days are ahead.  Or its pain and fatigue together.  Or its a new pain somewhere else or some other sypmtom and you nor sure if there is something else wrong with you or just part of the Fybro.. Then the low mood hits and you think your never going to get through it and what is the point.  This is so unfair. Why me??

So yes I feel everyone's pain on here.. I hold on to the fact I do have good days.  I do have days I laugh. I have days I feel normal. I get a week now and again I can do loads. I might suffer for it later but at least I get the odd day or week.  

These are what I hold on to because that is all I have got.  I also try to tell myself there are people tens times worse off than me and they are getting on with it..

Anything and everything to keep going.. Big hug to you all

Big hugs to all you ladies for your courage and endurance! We with FM can all relate to those times when we want to give up. Yet humans have this amazing ability to often rise above adversity. We all have families and friends that do love us and would be devestated if we were suddenly not there. I have had FM for over 35 years now. I think Faith has a great deal to do with endurance. Hope has a very powerful influence. I have strong Faith that there IS a Creator and He does have a plan for the earth and for humans. He never meant for us to suffer with illness and pain. And he does give us strength when we need it. I do Pray regularly and I unburden my cares and worries even in tears sometimes. I don't think it is just an exercise of being gullible. I really believe that He listens and cares. I am not talking about religion or fanaticism where it is all based on ritual or emotions. I am talking about the Bible. I have read it over the years and the wisdom in its pages, I believe strongly, comes from a HIgher source than humans. So I do rely on the hope that it gives us for a better future. With all the disturbing things that is happening in the world, and how this affects people as a whole, we definitely need Hope. Hope that things will change. That God does care and does have a plan for this planet and that He will intervene. Man has kinda done a Mess of things governing themselves. So don't despair girls! You can continue to endure your circumstances. We have been given an incredible strength within. As some have mentioned, we need to cherish the moments when we can laugh and enjoy our children and family and friends. Moments when we look at beauty such as a sunrise or just enjoying nature around us. The simple pleasures. Watching a good chick flick or reading a moving novel. We still can function and do things on certain days. Getting a hobby can help also. I draw portraits. Even needle point or crocheting is being creative. I know our hands don't always cooperate but there are still things we can do. We must find some interests. And as Laura mentioned, there are some dealing with so much worse challenges. It has a great deal to do with our attitude. Don't give up my dears! Continue supporting one another knowing that you are Never alone. There are those who need you dearly in their lives. Each of you are Precious individuals!  FM ladies are some of the kindest and caring people I know. xx

So back to reality here. Lol. One of the biggest things I wish for Asia a bath tub.  I live in a 5th wheel.  No tub.  Man would that ever be nice.  My hubby is going to make that happen for me this fall.  I can't wait to sock my screaming muscles.  

Of of course there's others times I wish I had a tub full of ice like the athletes do.  Wouldn't that be grand.  I'd spend all day going back and forth. Lol

Hi Crystal

It has been a challenge.  After suffering for almost over 20yrs and only diagnosed Aug 2014, I can honestly say I am pain free.  It has taken 18 months of herbal remedies and having patience and positive thinking as well as CBT therapy.  I am 46yrs of age. 

Message me privately if you would like to know more.

Sending you gentle hugs from ME to YOU...... xx

I hear you, it's a nasty disease, I only wish people around us had more insight into what we all go through years after years, I have felt like you crystal on many occassions, then I se my grandson do something funny and I realise., I wouldn't miss it.