What is it exactly that causes fusing ? What all is considered a "flare up".
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I thought I was doing so well. I actually thought I had LS under control...for about 3 weeks. Now I am fusing more and fast. Before the clitorus was fused over, but now it is very scarred and decreasing in size. My labia majora , on the side where I had no fusing, is now fusing. I do have some itching, at night only. No new white patches. I never had white patches on clit. I am using the triamcinolone every other day. I rub on clitoris. I'm using moisturizer.
1. When you see the fusing and scarring increasing with no other symtoms is that considered a flare?
2. What causes the fusing ? No white patches or itching where it is fusing. I constantly moisturizer so it isn't stickey.
3. Seems when I started making sure clit. was coverd with the triamcinolone it got worse. Does that some times happen?
4. What prevents the fusing...steroid or moisturizer ?
5. I know different women are helped with different moisturizers....such as coconut oil vs emuil oil. I always thought this was referring to what works for the irritation, itching, buring. But does it also refer to fusing? Might one moisturizer prevent fusing while another wouldn't? Or do they all work same in relation to fusing?
0 likes, 27 replies
kathleen65757 judy02533
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judy02533 kathleen65757
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kathleen65757 judy02533
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I use my Advantan fatty ointment every night and if that was happening I would also apply in the mornings til I had it under control.
kathleen65757 judy02533
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Guppy007 judy02533
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hanny32508 judy02533
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The realization that nothing will cure this disease was the toughest part for me to overcome. LS needs constant maintenance and once you have figured out what works for you it then becomes liveable.
judy02533 hanny32508
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Morrell1951 judy02533
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judy02533 Morrell1951
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andrea58721 judy02533
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maeflower78 andrea58721
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Guppy007 judy02533
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That being said, I will answer your questions as best I can.
1. I would say no. I consider a flare up to be when I have cuts, sores, spots, pain in the clitoris etc, that to me is a flare up. Fusing and scarring happen over time, slowly, often with no other symptoms, it is just another insidious aspect of LS...this is only my view of course.
2. No one really knows what causes the fusing, I suspect it's more likely to happen though when sleeping. I just make sure that I apply some sort of oil between my labia minora and labia majora before bed, and constantly throughout the day.
3. It's possible. I used Clob near my Vjay and all hell broke loose the next day, with a horrific rash, which was odd as Clob helps me in many other areas of my Vjay.
4. I believe it to be the oils, which coats the inner lips and stops them from "sticking" to the outer lips, especially when sleeping.
5. I use the oils (Emu, Coconut) to prevent fusing, I cannot imagine them stopping itching.....but I know they do for some women. I think many women find Witch Hazel helps for the itching, but I dont really experience the itching much. I can tell you that the first and last time I had the itching was after eating a LOT of sweet stuff one weekend.....that was my punishment...you really can't underestimate the importance of no sugar with this condition, Hanny, on this site, warned me, but I didn't really believe her (some things you just don't want to face) and of course, I had a terrible flare up, never to be forgotten and that's when I really started to cut back...now I am quite sick and can't eat any chocolate even if I wanted to, as I am sulfite intolerant (Sigh)
Best advice I can give you is to always eat Organic Food if you are able to.
judy02533 Guppy007
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Guppy007 judy02533
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sandra01720 Guppy007
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hanny32508 sandra01720
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And I make mistakes as well. Like the other day when I didn't realize the cheese hidden in a platter. (cheeses are a sure trigger for me) But at least I learned to recognize the early symptoms of LS reacting. I then can act fast to 'cool it'.
sandra01720 hanny32508
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Morrell1951 sandra01720
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judy02533 Morrell1951
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kathleen65757 judy02533
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Honey is a good substitute. I am a diabetic so avoid sugar mostly but occasional or limited use for some people is okay.
Some of my children who have food allergies or intolerances do use sugar without any consequences. But they do not have heaps of it.
My specialists for LS do not advise against any foods but I have never been able to have a lot of sugar.
I suspect it is individual.
Guppy007 sandra01720
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Morrell1951 judy02533
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sandra01720 Guppy007
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I notice when I eat unhealthy foods like potato chips, I tend to get itchy. I guess the outer the diet the better. Thanks for the tips to all you ladies!
sandra01720
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