What is the best pain relief?

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I've just been diagnosed with AC of the right shoulder plus bursitis and calcification, I'm about 2/3 months in and the constant pain and not sleeping is really getting to me, I'm very tearful and ashamed I'm not coping better. I've been signed off my busy responsible job for a week as I can't focus on anything. I've been having physio for four weeks but not helping despite being excruciatingly painful, I can work through it if I think it will help. Next stop is surgery - I'd do anything to alleviate some pain, I'm using cold and heat pads, plus I'm taking ibuprofen, codeine and paracetamol, which don't seem to do much other than make me feel spaced out, I have oral morphine but that makes me feel really sick...I'm also drinking alcohol in the evening which I know is not good long term but does help, although I've started to rely on it which worries me. I researched on the Internet extensively and I'm at a loss as to which way to turn...it feels like being in a very long dark tunnel - there is a light but I sure can't see it yet. Any advice would be really appreciated. 

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  • Posted

    Hi Karenmarie, I know exactly how you are feeling.  I got AC in nov. 2013.  I went for physio for 4 months, 3 acupuncture sessions, 4 massage therapy, 1 cortisone shot and the usual heat/cold packs, plus having x-rays, ultrasound and an MRI.  The results from the MRI confirmed AC. The dr. told me I was not a candidate for surgery (luckily) and it would just take time (2-5 years!!!!!!!). Nothing seemed to work.  The pain, as you say, was excruciating.  Just a little jolt brought me to my knees and in tears.  Luckily I was not working so didn't have to miss work.  We went south for 6 weeks and I tried swimming.  Seemed to loosen things up. Working in the water was a bit easier.  Also, I slept with a little pillow. Just held onto it to make sure my arm didn't move while I slept.  Used that for 6 months!  Anyway, to make a long story short, it has been 10 months now.  My shoulder is still stuck but the pain finally subsided around the 5-6 month.  Seemed to stop hurting all of a sudden.  Still can't put my arm around to my back and have trouble doing the back of my hair, but I have adapted.  Doesn't really matter now that the pain is gone.  You can adapt!  I am able to play golf (my swing is a little wonky since I can't get my arm up on the back swing!) and I use my left hand a lot more.  The bottom line is it WILL get better. You just have to be patient.  I know that is hard to do, but just hang in there.  You can do it!  PS.  I found wine helped too!!  Good luck!
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  • Posted

    Hi Karen. Some CAs are more stubborn than others. I had it in my left shoulder 4 yrs ago and after 5 weeks of terrible pain I had the right doctor give me a shot of cortisone in exactly the right spot (not all doctors know exactly how to do it properly) and within 3 weeks the pain was gone and movement came back within 8-10 months. Got it in my right shoulder in Dec and have had a tough time getting rid of it. Cortisone shot by same doctor has kept pain reasonable and it seems to be getting better after I had hudrodilation done to it. This one is stubborn! Read the forums on here as a lot of women ae to have a lot of success w the surgery which is quick as they just put you out to manipulate your shoulder to get movement back. I am now seeing an acupuncturist who seems to really know what she is doing and there seems to be some relief after each session (she sees me every day for an hour and I am going back for my 3rd day again there are all sorts of people who do acupuncture but she seems to know exactly what she is doing; not trying to relieve pain but gety 

    "Chi" back in order so my body can repair itself.... Good luck!

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  • Posted

    When I had my first frozen shoulder I went to an agagressive therapist who said do not put ice on it.  So I only put heat.  With my second shoulder I also put heat only.  I also started taking turmeric (curcumin) with black pepper extract.  It is wonderful for inflammation, which is a big part of frozen shoulder.  I took 1000 mg twice a day.  It is a blood thinner, so I went off aspirin and anti inflammatories.  It is also high in antioxitants.  The country of India where turmeric is a daily spice used in everything has one of the least rates of cancer and alzheimers

     

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    • Posted

      You may be right about tumeric warding off cancer and alzheimers. On the otherhand South Asians live 20 years shorter than us of the western world, the years of which these diseases come upon us.
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  • Posted

    Karenmarie,

    TIME!  I agree with Wendy.  On my right shoulder I did have manipulation.  On my left shoulder I did not.  Both took 4-5 months of physical theraphy, to alleviate some pain and give me some motion.  But it took my right shoulder  2 yrs before I got fall range.  Still have pain when I do anything like cleaning.  So it has only been 6 months in on the left shoulder.  Pain better, motion better but again probably a full 2 yrs to what will be normal for me.  Hang in there!

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  • Posted

    Thanks for your supportive replies  - I've now seen a shoulder specialist and I'm going to have capsular release surgery, in the hopes it will improve movement and easy the constant pain. I've never had surgery before like this along with a general anaesthetic  so a little worried about that!
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  • Posted

    Hope all goes well with op

    Im in a similar position and waiting for an MRI scan on shoulder

    I will look out for your updates with interest 

    Good luck 

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  • Posted

    I'm now on day three after capsular release surgery. It's sore but I can move my arm/shoulder for the first time in months! I'm also now going to have six weeks of physio as it's key to keep it mobile. Will keep you updated...
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    • Posted

      Thanks for the update 

      It has to be a relief that you have regained movement even if sore...

      2 weeks before i get a scan....

      Hope the physio goes well for you...

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    • Posted

      I had capsular release surgery almost 2 months ago. Before surgery I could barely get my arm away from the side of my body. After surgery I was immediately able to do things below shoulder height for the first time in ages and that has continued to improve but movements above shoulder height, even with weekly physio and lots of exercises, has not improved at all. It feels as if the rotator part is still stuck. People say "have patience" but it's difficult not to feel disappointed and worried that I will ever be back to normal. I definitely don't regret the surgery (excruciating pain has gone, I can sleep on it..........) but had hoped for better. I would be very interested to know how you get on with your recovery, it will maybe give me some hope.
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  • Posted

    I used Tramadol ....another name for this synthetic opiate is Ultram. Honestly it really helped me. However I recently took (2). 50 mg and got a terrible migraine .  I've been told that is not unusual with this drug but I never got them from just 1 pill. You could ask to try this Rx but me cautious. 
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  • Posted

    It is such frustrating condition, no one else can see your pain as it were. I thought I should at least have blood gushing from my shoulder the level of excruciating pain I was in! I've been prescribed Tramadol but have resisted taking it do far as I have had nasty reactions to opiate painkillers in the past. I have considerably more movement than I did before the operation,  like most people I could barely move my arm from my side, but  it is no where near how it was before, especially movement behind my back which is still very painful. The main reason I had the operation was to try and help the excruciating pain which I think it has. I'm working on getting over the general anaesthetic at the moment and I'm off work, I hope to return to work next week will be on reduced hours but just for one week and then I will be expected to get back into it, fortunately it's an office job that I do need to concentrate a lot and having pain has meant this is been really difficult for the past few months.
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