What is wrong with me?!

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I posted just before Christmas as I was taking Amitriptyline but had to come off them as I had really bad side effects. Luckily my symptoms passed after about 2-3 weeks and I'm back to square one again now with what I'm classing as "migraines", even though the doctor hasn't actually said they're definitley migraines. The doctor hasn't actually said what is wrong with me at all and just said it could be migraines. It's driving me mad now as I keep going back to the doctors and not getting anywhere. I feel like I'm going round in circles! I had an MRI scan back in August last year and that came back all clear and I had blood tests done to which didn't come back with anything and now they seem to have given up on me! The symtoms I am getting (and started in summer last year) are as follows:-

Blurred vission and I can't focus sometimes

Pins & needles in my limbs (including face)

Numbness in my limbs (also inclduding face) normally on one side

Waking up with a headache and feel hungover

Feeling sick when I'm hungry

Fatigue

Visual migraine (zig zag lines in vision which lasts about 20 minutes)

An aching pain in my neck and shoulder (only started recently)

I just don't feel like I have as much energy as I used to and I never know how I'm going to feel when I get out of bed. I'm only 34 but I feel like I'm an old lady sometimes. I;m just hoping there is someone out there who can shed some light on what the symptoms are I'm experiencing as I'm getting desperate now,

Thanks everyone

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7 Replies

  • Posted

    Oh and one more symptom I missed...I see flashing lights in my eyes sometimes when I move my eyes around.
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  • Posted

    It certainly does sound like a migraine to me.  Classic symptoms.  Are you seeing a regular dioctor or a neurologist?  If hi hare not seeing a neurologist, then I would certainly make an appointment with one.

    i have been have several different types of migraines since 2003 and now I see a headache specialist for treatment.  I too have felt that no one was listening to how I was feeling. It is very difficult because you think sometimes that you are crazy. I have found that you keep after it with your doctor. Since I have hemiplegic migraines whic are like having a stroke, there is no one single medication or treatment which makes them go away.  I have tried just about everything to help manage the symptoms.my advice to you---keep pushing your doctor, keep a journal of your headaches and symptoms.hope this will help some.

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    • Posted

      Hi there Susanne, Thanks for your reply, From doing my own research it appears I to suffer from hemiplegic migraines, although this hasn't officially been confirmed medically! I haven't seen a neurologist and I need my doctor to refer me but I'm sick of keep going back to see my doctors! I think that is the next step and I'm going to ask to be reffered as I don't think the doctor can help me anymore, I don't just want to be put on medication as this made me feel worse last time but I need something as some days I can't even function! Thanks for your help and advise and I'll let you know how I get on 
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  • Posted

    Hi so sorry you are suffering like this, it must be very frightening and frustrating. I am a migraine sufferer and it is frustrating. There is no difinitive test to diagnose, nor is there a single magic cure. We all seem to be very individual with our causes, signs, symptoms and therefore also what will help us.

    One of the best things you can do is keep a detailed diary. It will help you identify what in particular aggrivates or triggers your symptoms. This is no easy task but is well worth the effort. You need to note everything, sleep, rest, exercise, work hours, leisure activities, diet (exact times of meals, snacks, etc as well as what you consume). Also include exactly when symptoms occur, how long they last etc. I used an A4 sheet almost like a spreadsheet. It varies, but it may take a few weeks to identify issues. It also gives you a very concise history of your symptoms over a discrete period to discuss with your Dr. Good luck.

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    • Posted

      Hi Helen, Thanks for your reply and advice. I am definitley going to keep a diary as quite a few people have suggested that to me now.
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  • Posted

    hi i had same as you for a few years. and same as u going around in circles. now on gabapentin iv had 1 bout of 3 days out of 8 weeks i have found them very good
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    • Posted

      Hi there, sorry you are suffering to! I've sort of reach a brick wall now as I'm not taking any more pills because the side effects are awful so I'm suffering and there's nothing I can do! Also my boyfriend has noticed this week that my face is drooping slightly on one side which is quite worrying, Has anyone else had this?
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