What is wrong with me?

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I have never posted in this section before as I have never needed to, but I don't understand it, both my gastroenterology Consultant I am seeing for my bowels and my GP just SIT THERE looking perplexed and refuse to comment when I tell them of my symptoms so can anyone on here please please help me?

I get a feeling of profound swelling in my bladder and lower abdomen, feel like I could urinate bucket loads, walk to the loo which is very painful because of the swelling and bloating but then to my dismay I find I am having to "squeeze" my muscles and bear down very profoundly in order to get any of it out, then I can be kept going again and again up to say twelve times that morning and it takes a large ibuprofen and all day for the pain to go away completely and it has happened to me five times in about a month, its recent, and I cannot comprehend what is going on with me and as I have said it seems my GP and Consultant have not come across it before or surely they would have commented?

I am having a blood test for my kidneys but my doc was reluctant to let me have one as he maintains I had one in January so I then had to explain that this has arisen in the past month, why are they being so thick and why cant I get any answers, I should add I'd alreay told my GP that it was recent when he raised about me having a test in Jan, maybe interrogation would work but can anyone suggest to me what could be wrong as this is extremely painful, uncomfortable and embarrassing, I have asked for an MRI scan as they are extremely efficient, unlike most of the tests I have had for my bowels and i have co operated with every single one.

Please help.

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11 Replies

  • Posted

    PS  I should add it is not an infection as it was so bad Sunday I braved A&E and they said it was clear from a urine test, what's up?

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  • Posted

    Have you tried to urinate while sitting on the toilet and working on relaxing your body?  Sometimes I need to sit, pee a bit, then stand to finnish.

    I'm kinda new to this problem.  It started after I got food poisioning last year. My bowels became very inflammed.   Soon my bladder started giving me problems.  Like you, both my urologist and my g.i. doctor gave me blank looks when I asked about a connection.  

    I can suggest to you that you never push or force anything in your body.

    If you'd like I can tell you what else I did to resolve my problems.

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    • Posted

      Hi, I don't think its food poisoning but its interesting you say not to push but with me its unavoidable as with my bowels, the waste gets trapped so far up, my muscles simply do not function or work in the way they used to or the way it works with normal people who are not ill like me and I've also been on iron tablets which makes them tremendously sticky, so its been hell really, I can't leave it half way as the comfort would be way too considerable, but I am coming off the iron now as my aneamia is not as they call it, pernicious, so certainly not life threatening, and re pushing with my wee, sadly it is the same or similar problem, it will not come forth, and you can't hang midstream when the pain is as simply dreadful as mine is, so i have no option but to push and violently strain here.  I'm also haveing to digitally assist as the poo will not propell itself into the toilet and my rectum closes up like a clamp, so there are no options here really.

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  • Posted

    Your problem sounds similar to mine. The culprit was very large fibroids. I did not have the typical flooding/heavy flow problems associated with fiborids b/c of the location of the little buggers. They caused urinary retention, horrible constipation and a constant pressure feeling on my bladder. It took six years for my GP to figure this out and that was only after I was in A&E for urinary retention and they did a scan. I'm not saying that's your problem, but it is something to rule out.

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    • Posted

      Incidentally, I am in touch with PALS, the hospital liason people over my ongoing bowel and more recent urinary tract issues and am waiting for them to speak to the Consultant and get back to me so I hope you don't mind I have said I have been trouble shooting over this because was getting blank looks from the conventional channels and asked them to ask my Consultant if she thinks in view of the similarity of symptoms here, if I might possible have the same and could it be looked into and could I have that MRI scan as I feel sure it would be able to detect them or if not, what tests exist for it, and what forms of treatment as I said time is of the essence when people are facing illness, PALS are pretty good so hopefully I will actually get somewhere and it will ease the ground for when I next get an appointment with my Consultant, whenever that turns out to be!!  Hopefully not too far ahead!!  Thanks once again, I have just said I feel its worth looking into, without drawing conclusions just yet .  Very best wishes, Fiona

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    • Posted

      My fibroids were first detected on an ultrasound, but they've also shown up on MRIs, transvaginal ultrasounds and even simple examinations. Mine got so large that I could feel them by rubbing my pelvic area.

      There are many treatments, depending on your preference, desire to maintain fertility, etc. I had uterine fibroid embollisation (UFE) in December. This shrinks the fibroids. Unfortunately, mine had grown so large that they couldn't shrink enough to eliminate my discomfort, so I'm scheduled for a hysterectomy next week.

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    • Posted

      Gosh really?!  I do hope all goes well for you, don't get me wrong but it seems a bit drastic having a hysterectomy but obviously if that is what has been recommended.  Would you be able to tell me what is involved in a UFE?  I am hoping if I have them that that is all they will have to do but the best of luck anyway and thanks so much for your input, take care xx

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    • Posted

      In UFE the blood supply to the fibroids is cut off by the doctor injecting particles into the artery. This causes the fibroids to die and shrink. The amount they shrunk varies. If you want to maintain fertility, you shouldn't have UFE. It's a non-surgical procedure, but it is still somewhat invasive.

      About one-third of women who have UFE go on to have a hysterectomy b/c the UFE didn't relieve their symptoms. Fibroids are the most common reason for hysterectomy, so it's not drastic to have one for this reason at all. It is the only way to alleviate the problems from fibroids. Other options, like myomectomy, exist, but the fibroids can grow back. If you're in your late 40s like me and not needing to maintain fertility and suffering terribly from fibroids, a hysterectomy is the best option. My doctor said the fibroid pushing on my bladder could be causing permanent damage. It really was an easy decision after that.

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    • Posted

      Thanks Murnaloo, I get that entirely, it's just I'm a bit scared as to what might happen with me. I'm wondering if the UFE might be similar to having haemorrhoids banded in some respects as I had that and the idea with that procedure was to shrink them, which it did effectively. I'm not worried about my fertility as I'm nearly 57 now. Touch wood I'll have a word with the Consultant and they can run some tests. Good luck xx

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